- Joined
- Jun 19, 2020
- Messages
- 29
- Reason
- PALS
- Diagnosis
- 06/2020
- Country
- CH
- State
- VD
- City
- Lausanne
Hi everybody,
As I know people here have a lot of experience and are very knowlegeable. I m going to share my problem.
For the past few days, I have felt my legs having an irrepressible desire to move. It bothers me especially at night to sleep.
I am still able to move my whole body and I can turn around in bed.
I feel an irrepressible urge to move, I feel like the skin burning, itching. I can't stand pajamas or blankets.
It is not painful like cramps or spasticity. I think it's a bit like restless leg syndrom (RLS)
I feel my sleep is restless and my mom also told me that I move around a lot at night for a few times.
I succeeded in improving the cramps and the stiffnesses well with CBD, magnesium, turmeric, ...
Since the beginning sleep is a problem for me and I have tried several things to sleep (tradozone, lorazepam 2mg)
I am now taking Mirtazapine 15mg and lorazepam 1mg, melatonin 2mg
I wonder if it might be because of mirtazapine (RLS is a side effect of this one)
Can this be a real RLS or is it because of the ALS?
Are RLS drugs contraindicated with ALS?
Do you have a similar experience? What are you doing against this?
Thank's for sharing your experience and for your answers
As I know people here have a lot of experience and are very knowlegeable. I m going to share my problem.
For the past few days, I have felt my legs having an irrepressible desire to move. It bothers me especially at night to sleep.
I am still able to move my whole body and I can turn around in bed.
I feel an irrepressible urge to move, I feel like the skin burning, itching. I can't stand pajamas or blankets.
It is not painful like cramps or spasticity. I think it's a bit like restless leg syndrom (RLS)
I feel my sleep is restless and my mom also told me that I move around a lot at night for a few times.
I succeeded in improving the cramps and the stiffnesses well with CBD, magnesium, turmeric, ...
Since the beginning sleep is a problem for me and I have tried several things to sleep (tradozone, lorazepam 2mg)
I am now taking Mirtazapine 15mg and lorazepam 1mg, melatonin 2mg
I wonder if it might be because of mirtazapine (RLS is a side effect of this one)
Can this be a real RLS or is it because of the ALS?
Are RLS drugs contraindicated with ALS?
Do you have a similar experience? What are you doing against this?
Thank's for sharing your experience and for your answers