bmorato
New member
- Joined
- Mar 14, 2018
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 03/2018
- Country
- BRA
- State
- SP
- City
- Sao Paulo
Hi Bestfriendstilltheend,
As I could see in the article regatding the survey, the patients reported generalized weakness, so I believe this should be expected as side effect.
Actually the doctor did not prescribe pimozide as this is still not approved for this treatment. However, we could obtain this medicine in another way. Doctor's opinion is that we took the right decision, since we have no other option so far. You have also inspired us by informing that your husband's disease is not having any progress. We know that there are risks and everything is still in a very early stage, but I really believe this medicine will stop the progression.
I will talk to the doctor about contacting the Trial center to get some more orientation.
We are also in contact with some people in Brazil that got some improvement in a short term by taking a medicine called Tamoxifen. We will talk to the neurologist and maybe also go for this medicine.
Let's keep in touch.
I wish you and your husband all the best,
Thanks,
Bruno Morato
As I could see in the article regatding the survey, the patients reported generalized weakness, so I believe this should be expected as side effect.
Actually the doctor did not prescribe pimozide as this is still not approved for this treatment. However, we could obtain this medicine in another way. Doctor's opinion is that we took the right decision, since we have no other option so far. You have also inspired us by informing that your husband's disease is not having any progress. We know that there are risks and everything is still in a very early stage, but I really believe this medicine will stop the progression.
I will talk to the doctor about contacting the Trial center to get some more orientation.
We are also in contact with some people in Brazil that got some improvement in a short term by taking a medicine called Tamoxifen. We will talk to the neurologist and maybe also go for this medicine.
Let's keep in touch.
I wish you and your husband all the best,
Thanks,
Bruno Morato