- Joined
- Jan 28, 2016
- Messages
- 198
- Reason
- Lost a loved one
- Diagnosis
- 09/2014
- Country
- AUS
- State
- Wa
- City
- Kendenup
Elizabeth, my Pals presented with early respiratory difficulties. First he had minimal use of upper limbs, fatigue . Lost lower limb movement,and then could not breathe,especially when laying down on his back. He used his bipap machine very early and it really prolonged and enhanced his life. I would say that bulbar only appeared late in his progression. Complete lack of movement,bipap 24/7, then inability to speak,followed by inability to swallow. One too many losses. Bloody disease.