scared102
New member
- Joined
- Feb 22, 2023
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- KY
- City
- Louisville
Hi I'm posting this for fear I may have the respiratory onset of ALS. My symptoms of shortness of breath started well over a year ago and seems to imrpove after a few weeks but was still there. In the last week it has gotten much worse. I am short of breath just from sitting having to take in deeper breaths and minimal activity.
I must say I have severe health anxiety and would not go to a doctor over my fear, stupid I know. A month ago I finally went to my family doctor and told her about my breathing. She ran blood work, an ekg and chest exray. All were normal. Now I have an appointment for the pulmonologist next week.
Along with breathing issues I have twitches but I have been twitching for years. Sometimes I cough after eating or drinking and bits of food sometimes gets stuck in back of throat.
Sleep has gotten worse with breathing when falling asleep I stop breathing no matter the position. I can lay flat and breath fine. My heart races a lot as well. I don't have any issues with limbs, chewing or tongue. I know respiratory onset is rare but I really do not know what else it could be if lungs and heart is good. My oxygen is normal but I read you can still be short of breath with normal oxygen.
Does this sound like onset to you. I feel very alone and hopeless. The twitching in my abdomen and diagphram scare me as well. I am mid 30s female who has always been quite healthy. I appreciate anyone who reads this and who responds. Thanks
I must say I have severe health anxiety and would not go to a doctor over my fear, stupid I know. A month ago I finally went to my family doctor and told her about my breathing. She ran blood work, an ekg and chest exray. All were normal. Now I have an appointment for the pulmonologist next week.
Along with breathing issues I have twitches but I have been twitching for years. Sometimes I cough after eating or drinking and bits of food sometimes gets stuck in back of throat.
Sleep has gotten worse with breathing when falling asleep I stop breathing no matter the position. I can lay flat and breath fine. My heart races a lot as well. I don't have any issues with limbs, chewing or tongue. I know respiratory onset is rare but I really do not know what else it could be if lungs and heart is good. My oxygen is normal but I read you can still be short of breath with normal oxygen.
Does this sound like onset to you. I feel very alone and hopeless. The twitching in my abdomen and diagphram scare me as well. I am mid 30s female who has always been quite healthy. I appreciate anyone who reads this and who responds. Thanks