Pillow
New member
- Joined
- May 17, 2021
- Messages
- 9
- Reason
- CALS
- Diagnosis
- 00/0000
- Country
- IE
- State
- IE
- City
- IE
Hello.
My Dad will soon be attending the centre of excellence however the neurology team have asked him a lot of questions about where his symptoms started.
My Dads breathing is very compromised already although he says this started with foot drop. His voice was affected soon after the foot but he can still speak. He has symptoms over a year now. The team have spoken to him and his family about end of life options. He’s been using bipap about 5 months.
He has lost a lot of weight , is still mobile, can eat , drink , dress himself , is still driving etc.
I feel he’s at end stage because of the breathing is this something anyone has experienced?
My Dad will soon be attending the centre of excellence however the neurology team have asked him a lot of questions about where his symptoms started.
My Dads breathing is very compromised already although he says this started with foot drop. His voice was affected soon after the foot but he can still speak. He has symptoms over a year now. The team have spoken to him and his family about end of life options. He’s been using bipap about 5 months.
He has lost a lot of weight , is still mobile, can eat , drink , dress himself , is still driving etc.
I feel he’s at end stage because of the breathing is this something anyone has experienced?