swalker
Very helpful member
- Joined
- Dec 11, 2014
- Messages
- 1,607
- Reason
- DX MND
- Diagnosis
- 07/2014
- Country
- US
- State
- CO
- City
- Vail
I have been using a Resmed Astral 150 for Non Invasive Ventilation (NIV) for over a year now. It has taken a while to get the settings where they work for me, but now that it is dialed in I really like it. I am primarily using this for NIV when I am in bed and reclined or lying flat.
I also use a cough assist device.
Since I live at very high altitude (8.500 ft above sea level), I also use an oxygen concentrator. I have an oxygen concentrator and homefill unit, along with numerous oxygen tanks with accompanying regulators, etc. I know that using supplemental oxygen is typically avoided, but my situation is a bit of an outlier because of the altitude at which I live. To get my oxygen saturation where the doctors want it, I need the supplemental oxygen. Note that I do not have a portable oxygen concentrator, so when I stray from the bedroom (where the oxygen concentrator lives), we must carry one or more oxygen tanks to provide for my supplemental oxygen needs. This is cumbersome, to say the least! But, the oxygen tanks will provide oxygen in the event of a power outage.
Now for the problem I am having. When I am using the Astral 150 for NIV, the output of the oxygen concentrator is connected to the Astral 150. When I discontinue using the ventilator, I need to switch the output of the oxygen concentrator to a nasal cannula. I have to do this rapidly, because when I stop the NIV my diaphragm goes into spasm and using oxygen through the nasal cannula seems to help resolve the situation.
I am currently using a non-medical (regular old plumbing) ball valve to accomplish this. The output of the oxygen concentrator goes (via a long tube) into the ball valve. Depending on the position of the valve, the output is routed either to a tube leading to the Astral 150 or to a tube leading to a nasal cannula. We put the ball valve where I can reach it so I can make the switch myself when I want to stop using NIV for a bit.
This works, but is quite cumbersome. I currently have enough strength in my fingers to turn the ball valve, but it is a challenge at times. I know it will become more difficult as time goes on.
I want to continue to be as independent as possible, so I am looking for solutions that will reduce the number of devices and take the ball valve out of the picture.
My pulmonologist let me know of a device that is relatively new to the market made by Ventec Life Systems. This device, the VOCSN is a single, portable unit that is a combined ventilator (NIV and invasive), oxygen concentrator, cough assist, suction, and nebulizer device. It is modular, and I would start off with the ventilator, oxygen concentrator, and cough assist modules.
On paper, it looks like the perfect solution for me. It would reduce everything I use now down to a single, portable device. It has a battery life of "up to" 9 hours.
It is a bit daunting to consider moving from the Resmed Astral 150 that I have finally dialed in to be comfortable, so before I make the jump, I would like to get the opinion of folks here. What do you think about the VOCSN? Will it really do the job for me?
Thanks for your help!
Steve
I also use a cough assist device.
Since I live at very high altitude (8.500 ft above sea level), I also use an oxygen concentrator. I have an oxygen concentrator and homefill unit, along with numerous oxygen tanks with accompanying regulators, etc. I know that using supplemental oxygen is typically avoided, but my situation is a bit of an outlier because of the altitude at which I live. To get my oxygen saturation where the doctors want it, I need the supplemental oxygen. Note that I do not have a portable oxygen concentrator, so when I stray from the bedroom (where the oxygen concentrator lives), we must carry one or more oxygen tanks to provide for my supplemental oxygen needs. This is cumbersome, to say the least! But, the oxygen tanks will provide oxygen in the event of a power outage.
Now for the problem I am having. When I am using the Astral 150 for NIV, the output of the oxygen concentrator is connected to the Astral 150. When I discontinue using the ventilator, I need to switch the output of the oxygen concentrator to a nasal cannula. I have to do this rapidly, because when I stop the NIV my diaphragm goes into spasm and using oxygen through the nasal cannula seems to help resolve the situation.
I am currently using a non-medical (regular old plumbing) ball valve to accomplish this. The output of the oxygen concentrator goes (via a long tube) into the ball valve. Depending on the position of the valve, the output is routed either to a tube leading to the Astral 150 or to a tube leading to a nasal cannula. We put the ball valve where I can reach it so I can make the switch myself when I want to stop using NIV for a bit.
This works, but is quite cumbersome. I currently have enough strength in my fingers to turn the ball valve, but it is a challenge at times. I know it will become more difficult as time goes on.
I want to continue to be as independent as possible, so I am looking for solutions that will reduce the number of devices and take the ball valve out of the picture.
My pulmonologist let me know of a device that is relatively new to the market made by Ventec Life Systems. This device, the VOCSN is a single, portable unit that is a combined ventilator (NIV and invasive), oxygen concentrator, cough assist, suction, and nebulizer device. It is modular, and I would start off with the ventilator, oxygen concentrator, and cough assist modules.
On paper, it looks like the perfect solution for me. It would reduce everything I use now down to a single, portable device. It has a battery life of "up to" 9 hours.
It is a bit daunting to consider moving from the Resmed Astral 150 that I have finally dialed in to be comfortable, so before I make the jump, I would like to get the opinion of folks here. What do you think about the VOCSN? Will it really do the job for me?
Thanks for your help!
Steve