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karsey

New member
Joined
Apr 17, 2018
Messages
4
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
NC
City
Raleigh
I lost my Dad, Jeff Long (who was active on this site), in October of 2015 to ALS. I am currently looking at the Infant Feeding Characteristics of Patients with ALS with the University of North Carolina at Chapel Hill. The information is listed on the National ALS Registry website: https://www.cdc.gov/als/ALSNews.html

I have posted the link to the survey right below if you are interested in taking part in my research study. Also, please share with those you think might be interested. It takes about 2-5 minutes to complete. May we never give up the Fight Against ALS!

https://unc.az1.qualtrics.com/jfe/form/SV_elCPTlpgDOfKkT3
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,796
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
Completed survey.
 

karsey

New member
Joined
Apr 17, 2018
Messages
4
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
NC
City
Raleigh
Thank you, Kim!
 
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