- Joined
- Nov 5, 2009
- Messages
- 14,208
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Seattle
Reposting an edited version, so I have hyperlinked Dr. Servera's e-mail below for those who wish to respond to him:
My name is Emilio Servera, and I am the head of the Pulmonary Medicine Department in the Hospital Clinico Universitario in Valencia, Spain. I also run the Research Group for Respiratory Problems in Neuromuscular Diseases at the Institute of Health Research INCLIVA.
There are some evidences that Nuedexta may have positive effects on the progress of bulbar involvement. Considering that, in our Pulmonary Medicine Department we are going to use Nuedexta on ALS patients that ask for it with the goal of increasing the length of NIV usefulness and delaying the moment at which NIV becomes ineffective because of bulbar dysfunction.
Since data available regarding its safety and effectiveness are still very scarce, I would like to ask those ALS patients that are already taking Nuedexta to give us any experience of its effects and any safety issues that they have encountered.
Thank you very much
Emilio Servera MD
My name is Emilio Servera, and I am the head of the Pulmonary Medicine Department in the Hospital Clinico Universitario in Valencia, Spain. I also run the Research Group for Respiratory Problems in Neuromuscular Diseases at the Institute of Health Research INCLIVA.
There are some evidences that Nuedexta may have positive effects on the progress of bulbar involvement. Considering that, in our Pulmonary Medicine Department we are going to use Nuedexta on ALS patients that ask for it with the goal of increasing the length of NIV usefulness and delaying the moment at which NIV becomes ineffective because of bulbar dysfunction.
Since data available regarding its safety and effectiveness are still very scarce, I would like to ask those ALS patients that are already taking Nuedexta to give us any experience of its effects and any safety issues that they have encountered.
Thank you very much
Emilio Servera MD