1smurf
New member
- Joined
- Feb 7, 2022
- Messages
- 2
- Reason
- PALS
- Diagnosis
- 06/2021
- Country
- US
- State
- CO
- City
- Grand Junction
Relyvrio and my side effects
Taking Riluzole, Radicava and Relyvrio now.
I had an event with Relyvrio on the 12th day of taking 2 doses a day (evening dose), when I took the evening dose, I got immediate abdominal pain (gut punch), nausea and muscle and joint pain in my body, I couldn’t get comfortable. Almost went to the ER, but I took a hot bath which relieved the muscle and joint pain. Three days leading up to this event I would wake up freezing, to the point I started wearing sweats and gloves to bed. I would also wake up with cold sweats. I was on my first week off with the Radicava when this happen. Took 2 days off with my meds.
Side Effects,
These effects where early on and no such much now-
Diarrhea, first day only.
No headache, it’s more of a pressure in my sinuses between my eyes.
Pressure in my ears.
Slight Niacin glow as I would call it.
Current side effects,
Bitter taste I can live with, the change in taste is a different thing, no amount of toothpaste, mouth wash, mouth strips or spray will get rid of the taste in my mouth. This is the worst.
Loss of appetite.
Fatigue.
I’m slowly working my way to 2 doses a day, full dose in the AM and reduced in PM, at ¾ dose in evening almost now.
Taking Riluzole, Radicava and Relyvrio now.
I had an event with Relyvrio on the 12th day of taking 2 doses a day (evening dose), when I took the evening dose, I got immediate abdominal pain (gut punch), nausea and muscle and joint pain in my body, I couldn’t get comfortable. Almost went to the ER, but I took a hot bath which relieved the muscle and joint pain. Three days leading up to this event I would wake up freezing, to the point I started wearing sweats and gloves to bed. I would also wake up with cold sweats. I was on my first week off with the Radicava when this happen. Took 2 days off with my meds.
Side Effects,
These effects where early on and no such much now-
Diarrhea, first day only.
No headache, it’s more of a pressure in my sinuses between my eyes.
Pressure in my ears.
Slight Niacin glow as I would call it.
Current side effects,
Bitter taste I can live with, the change in taste is a different thing, no amount of toothpaste, mouth wash, mouth strips or spray will get rid of the taste in my mouth. This is the worst.
Loss of appetite.
Fatigue.
I’m slowly working my way to 2 doses a day, full dose in the AM and reduced in PM, at ¾ dose in evening almost now.
