- Joined
- Nov 12, 2015
- Messages
- 657
- Reason
- CALS
- Diagnosis
- 11/2015
- Country
- US
- State
- CA
- City
- San Diego
Thanks to all of you for your input. We actually got the Rx for the power chair from his PCP because we would have had to wait until the elevator was complete and the clinic could see us in February.
My caregiver suggested that if he really doesn't want to go to clinic I could keep the appointment and discuss some of the issues with them on my own. That way we maintain the relationship and I can perhaps ask questions on his behalf. My caregiver has worked for patients with ALS so has experience with different situations, unlike me who is sometimes in uncharted waters. I think our ALS clinic is great but they are often busy and booked. His PCP is really responsive; I can ask her for anything he needs and she helps.
I told him he doesn't have to make the decision for another few weeks. The appointment is February 11. If I don't have a van by then we can arrange transport. I do still want to get a van because I think it will do him good at this stage to get out. I'd like to just take him down to the beach.
V
My caregiver suggested that if he really doesn't want to go to clinic I could keep the appointment and discuss some of the issues with them on my own. That way we maintain the relationship and I can perhaps ask questions on his behalf. My caregiver has worked for patients with ALS so has experience with different situations, unlike me who is sometimes in uncharted waters. I think our ALS clinic is great but they are often busy and booked. His PCP is really responsive; I can ask her for anything he needs and she helps.
I told him he doesn't have to make the decision for another few weeks. The appointment is February 11. If I don't have a van by then we can arrange transport. I do still want to get a van because I think it will do him good at this stage to get out. I'd like to just take him down to the beach.
V