- Joined
- Nov 12, 2015
- Messages
- 657
- Reason
- CALS
- Diagnosis
- 11/2015
- Country
- US
- State
- CA
- City
- San Diego
I'm posting this thread here as I thought I could get some input from both CALS and PALS. My PALS is in a power chair now, and I need to look for a handicap van (things have progressed in the past few months) to be able to take him places, including the ALS clinic. We have an ALS clinic appointment in February so I need to find some way to transport him there. Now he is expressing reluctance to go to the appointment. He says they are only going to look at him and see his progression and write notes on it.
Wondering whether anyone else feels this way or whether other CALS and PALS think there is a lot of benefit from going to our next appointment. He went about 7 months ago, but I wasn't able to keep his October appointment because we were working on modifications to get him out of the house. His condition has progressed from our previous visit, but he is still eating, speaking, and doing standing transfers. Any thoughts are appreciated.
V
Wondering whether anyone else feels this way or whether other CALS and PALS think there is a lot of benefit from going to our next appointment. He went about 7 months ago, but I wasn't able to keep his October appointment because we were working on modifications to get him out of the house. His condition has progressed from our previous visit, but he is still eating, speaking, and doing standing transfers. Any thoughts are appreciated.
V