Regenerative Medicine
- Thread starter kellysal
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- ozone peptides regenaritive
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- Nov 5, 2009
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- Lost a loved one
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Don't waste your money on the first three (not even sure what therapy with cytosomes would mean since that just means part of a cell), since as Nikki points out, peptides and ozone are definitely part of the "kitchen sink feeding bank account" ecosystem.
However, some here have felt better with less sugar [depends where you are starting from, of course], which makes sense since ALS takes a toll on metabolism and needing to ramp up insulin production is a drain on the body. Also, as the disease progresses, you are doing fewer sprints and other activities requiring intense bursts of energy.
Since keto means reducing all carbs, not just complex ones, I would question jumping in full throttle since again, living with ALS requires readily accessible energy and what is lacking will affect remaining muscle bulk, respiratory drive, etc. However, if you wanted to reduce carbs gradually to see if you can find a new sweet spot (no pun intended), that would make more sense. Healthy fats and lean protein are certainly important.
However, some here have felt better with less sugar [depends where you are starting from, of course], which makes sense since ALS takes a toll on metabolism and needing to ramp up insulin production is a drain on the body. Also, as the disease progresses, you are doing fewer sprints and other activities requiring intense bursts of energy.
Since keto means reducing all carbs, not just complex ones, I would question jumping in full throttle since again, living with ALS requires readily accessible energy and what is lacking will affect remaining muscle bulk, respiratory drive, etc. However, if you wanted to reduce carbs gradually to see if you can find a new sweet spot (no pun intended), that would make more sense. Healthy fats and lean protein are certainly important.
- Joined
- Nov 18, 2014
- Messages
- 4,948
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- PALS
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- 08/2015
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- US
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- South
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- The Beach
I was on Keto for a few months and felt great. I had to go off it because I lost 10 pounds. I ended up going grain and dairy free and it made me feel better. I recently re-introduced Greek yogurt and noticed bloating and fullness. Too bad because I love dairy.
You don't have to be allergic to something to be sensitive to it. I tried digestive enzymes thinking it just might have been lactose intolerance but it didn't help.
The other thing is when I was off both grain and dairy for three months my CRP came way down and other indications of inflammation also decreased. The bottom line is that I feel better without grain and dairy in my diet. Others do not. Mayo recommended going gluten free but not entirely grain free.
You'll have to figure out what agrees with you and what doesn't. I would recommend plenty of good fat (nuts, avocado, wild salmon, etc.) Your brain needs fat to function. I eat chia seed meal and golden flax meal every day in my smoothies. Their Omega 3 isn't as easily absorbed as oily fish but I like the taste. Olive oil is another good choice. Some say organic coconut oil helps them maintain weight.
I don't think added sugar is good for anyone, especially when you can add a banana or other fruit to a smoothie to sweeten it. I don't even have sugar in my house.
You don't have to be allergic to something to be sensitive to it. I tried digestive enzymes thinking it just might have been lactose intolerance but it didn't help.
The other thing is when I was off both grain and dairy for three months my CRP came way down and other indications of inflammation also decreased. The bottom line is that I feel better without grain and dairy in my diet. Others do not. Mayo recommended going gluten free but not entirely grain free.
You'll have to figure out what agrees with you and what doesn't. I would recommend plenty of good fat (nuts, avocado, wild salmon, etc.) Your brain needs fat to function. I eat chia seed meal and golden flax meal every day in my smoothies. Their Omega 3 isn't as easily absorbed as oily fish but I like the taste. Olive oil is another good choice. Some say organic coconut oil helps them maintain weight.
I don't think added sugar is good for anyone, especially when you can add a banana or other fruit to a smoothie to sweeten it. I don't even have sugar in my house.
Sandy14
Member
- Joined
- Dec 20, 2020
- Messages
- 27
- Reason
- PALS
- Diagnosis
- 07/2020
- Country
- US
- State
- NY
- City
- Westchester
I have gone off gluten and dairy, as well as added sugar and in general my body has felt so much better (though my bulbar palsy has continued to progress). As I mentioned in my thread, I'm about to start NAD+ IV therapy which I'm hopeful about. I think taking any steps which make you feel better and/or more optimistic and more in control of your future is good - but that's just my opinion. I agree there are many con artists out there who will try to take advantage of us so keep cost in mind as well as any potential adverse effects. I have been working with both neurologists as well as some "outside-the-box" therapists/doctors, including functional doctors, homeopaths, acupuncturists and especially a Sacrocranial therapist. Looks like you're located down in WPB, and I have a co-worker who went down to a functional medical center down in that vicinity for his son who has suffered from neurological lyme. He has gotten much better after cleansing his diet and some more outside the box approaches. I am more than happy to offer you names of places that I've been to as well as the center my coworker went to down there if you're interested.
I know many people roll their eyes at some of these less conventional approaches, but in my opinion we don't have to just sit back and wait for ALS to take over our lives entirely. I believe feeling like you have some control and positive steps you can take, that at least add optimism, help heal your mind and body. For what it's worth, before I started down this path I used to roll my eyes at this stuff just like most people.
I know many people roll their eyes at some of these less conventional approaches, but in my opinion we don't have to just sit back and wait for ALS to take over our lives entirely. I believe feeling like you have some control and positive steps you can take, that at least add optimism, help heal your mind and body. For what it's worth, before I started down this path I used to roll my eyes at this stuff just like most people.
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