I've spoken about my symptoms before, beginning in mid-May I first noticed fasciculations in my calves, and afterwards in other parts of my body, including my face.
Since about a month ago, I've been getting fasciculations in my tongue. At first, it was just one or two every few days, but then it got to a point where for three days I constantly had them on my tongue. After that it kind of calmed down and now it's happening just once or twice a day, but strong enough that I can definitely tell it's happening.
Along with that has come the throat-clearing. I feel like there's something (saliva? mucus?) stuck at the back of my throat and am clearing my throat all day.
Now, I'd been having some episodes of shoulder/neck pain which I hadn't associated with anything and just figured were stress-related. (I did see my regular doctor about this and he said they were probably caused by stress) These happened intermittently throughout September and have mostly stopped since then, though they still happen occasionally.
Does anyone on this forum who suffers from bulbar onset have similar initial symptoms? I'm just scared and confused at this point, since my twitching started in my lower legs, so I would've assumed that meant it was limb onset, but now I'm having tongue fasciculations along with throat issues.
I have an EMG scheduled for Nov. 19th, which will hopefully be more thorough than the September 30th one (which my neurologist said was "useless"), but I won't see my neurologist again until December 3rd, so I'm still a long ways away from getting any answers.
My neurologist did say that ALS was a definite possibility. Don't know what to do at this point, the stress is really getting to me.
Since about a month ago, I've been getting fasciculations in my tongue. At first, it was just one or two every few days, but then it got to a point where for three days I constantly had them on my tongue. After that it kind of calmed down and now it's happening just once or twice a day, but strong enough that I can definitely tell it's happening.
Along with that has come the throat-clearing. I feel like there's something (saliva? mucus?) stuck at the back of my throat and am clearing my throat all day.
Now, I'd been having some episodes of shoulder/neck pain which I hadn't associated with anything and just figured were stress-related. (I did see my regular doctor about this and he said they were probably caused by stress) These happened intermittently throughout September and have mostly stopped since then, though they still happen occasionally.
Does anyone on this forum who suffers from bulbar onset have similar initial symptoms? I'm just scared and confused at this point, since my twitching started in my lower legs, so I would've assumed that meant it was limb onset, but now I'm having tongue fasciculations along with throat issues.
I have an EMG scheduled for Nov. 19th, which will hopefully be more thorough than the September 30th one (which my neurologist said was "useless"), but I won't see my neurologist again until December 3rd, so I'm still a long ways away from getting any answers.
My neurologist did say that ALS was a definite possibility. Don't know what to do at this point, the stress is really getting to me.