Cathy you don't indicate whether you are north, south or west of Sydney.
Dominic Rowe is highly regarded, but I wouldn't feel the need to see him first necessarily, but would certainly pick him for the second opinion if you are diagnosed.
Contact MND NSW for some personal help, sorry I can't link to them for you as they sell merchandise.
this are the MND clinics but they are not your only choices
NEW SOUTH WALES
Calvary Health Care MND Service
91–111 Rocky Point Road, Kogarah NSW 2217
Contact: Coordinator Donna Berry
T: (02) 9553 3444 (direct) or (02) 9553 3111
E:
[email protected]
Fax: (02) 95881635
St Joseph's Hospital MND Clinic
2A Normanby Rd, Auburn, NSW 2144
Contact: Coordinator Julie Labra
T: (02) 9749 0211 (Mon–Thurs)
E:
[email protected]
Liverpool Hospital MND Clinic
Corner Elizabeth & Goulburn Streets, Liverpool NSW 2170
Contact via reception (02) 8738 3000 & ask for MND clinic
Fax: (02) 8738 4102
Macquarie Neurology Clinic
Suite 204, level 2, 2 Technology Place
Macquarie University, NSW, 2109
Contact: CNC Kristina Barnes
T: (02) 9812 3742 (Kristina)
E:
[email protected]
Forefront MND/FTD Clinic
Brain and Mind Centre
Level 4/94 Mallett Street, Camperdown, NSW 2050
Contact: Co-ordinator Hannah Timmins
T: (02) 9351-0976 (Monday-Friday)
F: (02) 9114-4254
E:
[email protected]
MND Clinical Nurse Consultant: Margie Zoing
T: 0418 617 681 or (02) 9114-4265
E:
[email protected]
ALS/MND Multidisciplinary Clinic
Brain and Nerve Research Center, Concord Hospital
Building 20, Level 1, Hospital Rd, Concord, NSW 2139
T: 9767 8447
E:
[email protected] or
[email protected]