Recently started having new symptoms

[MFurrow]

The neurologist didn’t have a lot of answers today. He believes I need to see a neuro muscular specialist and is setting that up at UAMS. When I asked what it could be causing the symptoms with the normal mri showing no disease activity he wouldn’t give any straightforward answers but he said that it was above his speciality. He did prescribed some stimulants to help with the severe fatigue.

 

[Nikki J]

Did you get your emg explained?

 

[MFurrow]

I didn’t get the copy he just said they were abnormal again. I had my 3 little ones with me and was surprised that he was wanting to send me somewhere else. He seemed more concerned with getting the office people to set up that appointment than really elaborating much. I was exhausted and forgot to even ask for a copy. I think I will get a copy of all tests I’ve had done blood work and imaging since January so I have it in hand to discuss with the specialist when we go. I feel like so many that I’ve seen have done their own tests and not looked at everything everyone else has done but we have basically exhausted all blood work testing I think. And they are completely normal. I’ve done so much research on my own that I need to quit researching as it just gives me anxiety lol. I also have considered that it could be a Chiari malformation but a lot of that doesn’t fit. I’m so exhausted and frustrated with the non answers.

 

[MFurrow]

I do remember him saying the ulnar area in my right arm was the worst area and that he would consider it severe on the emg. I’m not that knowledgeable about the emg and what all that could insinuate but he mentioned medial having abnormalities as well and specifically asked if I had any pain or numbness or tingling and I do not. Just weak to where I cannot use it as normal.

 

[Nikki J]

Getting the EMG and the NCS results would give you the most information at this point. You have a right to your medical records