Snowbird
Active member
- Joined
- Oct 7, 2004
- Messages
- 61
No sympathies please. I have countless wonderful memories of our lives together. Married over 32 yrs. My husband's first symptoms appeared 3 yrs ago with loss of range in one arm. Then it progressed to the other arm, and finally his legs. His head and neck were never affected. I was his main cargiver for 2 1/2 yrs. It was tough, however I am strong, innovative, medical background, and never gave up. The best lift that I was able to find was the Multi Lift out of NY. I was able to adapt it to our 1-T truck, our 5th wheel, and our home. Now I am very conscious of homes that have no wheelchair accessability. Jack had numerous tests at HSC in Winnipeg, as well as Toronto General, and was diagnosed as having an unidentified Motor Neuron Disease.
It was only last April that the ALS Clinic at Deer Lodge Hospital gave him a final diagnosis of ALS. Jack spent his last 6 months in our local rural hospital and received excellent care. His breathing capacity decreased by 10% each month until finally he did not have any air left. Our whole family was with him, and he was heavily sedated at the time that he passed. There was no struggle, just peace and relief for everyone.
His spirit will always be with us, and we are often surprised at how he is still involved in our decision making, and also that his sense of humour surfaces daily. He had/has that much impact on our lives!
If there is anything that I can do to help anyone with coping with this horrid disease, either physically or emotionally, please feel free to contact me. I came up with a few simple innovations that helped us out. :idea: :idea:
Pat .......... [email protected][/color]
It was only last April that the ALS Clinic at Deer Lodge Hospital gave him a final diagnosis of ALS. Jack spent his last 6 months in our local rural hospital and received excellent care. His breathing capacity decreased by 10% each month until finally he did not have any air left. Our whole family was with him, and he was heavily sedated at the time that he passed. There was no struggle, just peace and relief for everyone.
His spirit will always be with us, and we are often surprised at how he is still involved in our decision making, and also that his sense of humour surfaces daily. He had/has that much impact on our lives!
If there is anything that I can do to help anyone with coping with this horrid disease, either physically or emotionally, please feel free to contact me. I came up with a few simple innovations that helped us out. :idea: :idea:
Pat .......... [email protected][/color]