Hopeful63
New member
- Joined
- Jul 21, 2017
- Messages
- 2
- Reason
- PALS
- Diagnosis
- 03/2017
- Country
- US
- State
- Mn
- City
- Duluth
I have never posted in a forum or participated in one. I am sitting here tonight unable to sleep. In in a state of great sadness and despair. My husband is sleeping and i know i could wake him but he's under such stress and strain of this I don't feel as if I can burden him with this
i was just diagnosed with ALS the end of March. Due to scheduling and less groups in the summer months, I haven't been able to attend a support group yet. I've contacted the ALS society and they've been wonderful so I'll be ready when the August group meets!
I thought fighting and surviving breast cancer was my biggest battle I would face in my life. Little did I know that my leg weakness and stumbling a year later would lead to this diagnosis. It did take three years to come to the diagnosis.
It seems now that I've been diagnosed, the symptoms are progressing faster. I'm so sad and scared. I have two little grandsons who I love with all my heart that I can't bear the fact of leaving them. Going thru cancer and now this I've watched as people have pulled away. I think they don't know what to say or how to act. I feel Like I've been forgotten.
I do have an adapted van that I can drive and for that I am grateful. To go any distance over an hour or so causes fatigue so i usually ask a friend to drive for these outings. I can't stand or walk at all but I do have a power chair. Very few of my friends are comfortable to strap my chair in and then drive. I live in a very rural area so buses or other transportation isn't accessible.
I guess I don't know what I wanted to accomplish by writing this tonight. Maybe it is just a safe way that I can say how I feel. I do feel a bit better and the tears have stopped. I think just putting some of my feelings into words helps
i was just diagnosed with ALS the end of March. Due to scheduling and less groups in the summer months, I haven't been able to attend a support group yet. I've contacted the ALS society and they've been wonderful so I'll be ready when the August group meets!
I thought fighting and surviving breast cancer was my biggest battle I would face in my life. Little did I know that my leg weakness and stumbling a year later would lead to this diagnosis. It did take three years to come to the diagnosis.
It seems now that I've been diagnosed, the symptoms are progressing faster. I'm so sad and scared. I have two little grandsons who I love with all my heart that I can't bear the fact of leaving them. Going thru cancer and now this I've watched as people have pulled away. I think they don't know what to say or how to act. I feel Like I've been forgotten.
I do have an adapted van that I can drive and for that I am grateful. To go any distance over an hour or so causes fatigue so i usually ask a friend to drive for these outings. I can't stand or walk at all but I do have a power chair. Very few of my friends are comfortable to strap my chair in and then drive. I live in a very rural area so buses or other transportation isn't accessible.
I guess I don't know what I wanted to accomplish by writing this tonight. Maybe it is just a safe way that I can say how I feel. I do feel a bit better and the tears have stopped. I think just putting some of my feelings into words helps
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