blitzc
Distinguished member
- Joined
- Apr 20, 2018
- Messages
- 455
- Reason
- PALS
- Diagnosis
- 01/2018
- Country
- US
- State
- OH
- City
- Massillon
Hello Everyone!
My name is Cathy and am new here and trying posting for only the second time. Not so certain about how the rules and regulations work and feeling a bit apprehensive. What do I say to all of you?
I am 53 years old and live in Ohio with my husband. We recently became empty nested - our son is at college most of the year and our daughter is a recent college grad living on her own. I am a fourth-grade elementary school teacher looking to retire in one more year. (Not sure what this next year will bring). Many of the things I would use to describe me are becoming impossible or very difficult to do anymore-I used to be highly active with the community, school, and church activities as well as an avid walker and gardener.
I have read many threads and will continue to gain information about my disease from the experts here. We have so much to learn!
I have been on Radicava since March following my diagnosis in January. We found a second doctor who confirmed the diagnosis but offered us a much greater sense of compassion. His office is almost 2 hours away but we feel it is worth it. My infusion takes place at home with my husband or daughter as the daily "nurses". I feel blessed to be in the situation of not having to travel for this to take place. This has allowed me the ability to continue working.
So many questions swirling through my head that I don't know where to begin...Where do we begin? Help us out....
I had about 2 months of OT/PT to start me on adaptive behaviors and exercise routines for home. I now have a toilet seat in one bathroom at home to help with this difficulty. I have had handrails installed in our garage to help with the 3 steps into the house.
I have not started any legal preparations....what do we do here? I have not applied for retirement yet but will do so this fall...do I set up normal retirement insurance?
So gracious for all the replies I anticipate will be forthcoming!
Cathy
My name is Cathy and am new here and trying posting for only the second time. Not so certain about how the rules and regulations work and feeling a bit apprehensive. What do I say to all of you?
I am 53 years old and live in Ohio with my husband. We recently became empty nested - our son is at college most of the year and our daughter is a recent college grad living on her own. I am a fourth-grade elementary school teacher looking to retire in one more year. (Not sure what this next year will bring). Many of the things I would use to describe me are becoming impossible or very difficult to do anymore-I used to be highly active with the community, school, and church activities as well as an avid walker and gardener.
I have read many threads and will continue to gain information about my disease from the experts here. We have so much to learn!
I have been on Radicava since March following my diagnosis in January. We found a second doctor who confirmed the diagnosis but offered us a much greater sense of compassion. His office is almost 2 hours away but we feel it is worth it. My infusion takes place at home with my husband or daughter as the daily "nurses". I feel blessed to be in the situation of not having to travel for this to take place. This has allowed me the ability to continue working.
So many questions swirling through my head that I don't know where to begin...Where do we begin? Help us out....
I had about 2 months of OT/PT to start me on adaptive behaviors and exercise routines for home. I now have a toilet seat in one bathroom at home to help with this difficulty. I have had handrails installed in our garage to help with the 3 steps into the house.
I have not started any legal preparations....what do we do here? I have not applied for retirement yet but will do so this fall...do I set up normal retirement insurance?
So gracious for all the replies I anticipate will be forthcoming!
Cathy