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JanJ

New member
Joined
Sep 10, 2007
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2
Reason
PALS
Country
England
State
Staffordshire
City
Stoke on Trent
Hi,
My mum has just been diagnosed with MND. She is 72 and has been having symptoms for about a year.
There are a couple of questions I'd like to ask...
The consultant says she doesn't present 'normally' She started having problems with her right leg and then her right arm began to go. He says normally it's the legs or the arms at first, not one of each. Can anyone tell me how MND normally starts?
She doesn't have any twitches. Her right arm does jump though with loud noises ie a ringing telephone.
Her leg muscle are very week and she is getting about the house on a zimmer frame now. Does all of this sound familiar to anybody? We are still hoping the diagnoisis wrong.
Jan J
:confused:
 

ZenArcher

Senior member
Joined
Feb 22, 2007
Messages
672
Reason
PALS
Diagnosis
02/2007
Country
US
State
PA
City
McEwensville
What my neurologist told me was that it would travel either up/down or across but not diagonally. In my case it started in my left hand/arm is working it's way to my right arm but it could have gone to my left leg and still been normal from what I understand. Other than that I don't believe there is a normal. Like Augie says, "I redefine normal everyday". Hope that answers your question.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Hi Jan and welcome to the forum. Sorrry to hear about your Mom. This place is a great resource for those seekign information and support. Our members are caring and knowlegable. Glad you found us. Cindy
 

AAA

Member
Joined
Feb 14, 2007
Messages
11
Reason
Lost a loved one
Diagnosis
11/2009
Country
US
State
AZ
City
Anthem
Mine started in my left leg and right arm. Loud noises also make me jump. I can still take the dogs for a walk but can't take my fourteen year old daughter shopping. BUMMER! Standing in one place is really hard on my legs.
Angie in AZ
 

JanJ

New member
Joined
Sep 10, 2007
Messages
2
Reason
PALS
Country
England
State
Staffordshire
City
Stoke on Trent
Hi,
Thanks all for your reply's. It's funny, Zenarcher says MND can't go diagonally, but in Angie's case it has. Like you say, nothing's 'normal' with this disease!

My Mum has gone from good health to zimmer frame in a year. She woke up one morning and as she says, had to 'think'about taking her right leg with her. She thought she'd had a mild stroke in her sleep.
How did anybody else's start? I believe some people start dropping things and seem a little clumsy, is that right?
Sorry if I'm delving, but I'm just trying to understand a bit more about the diease.
Jan
 

John1

Very helpful member
Joined
Feb 25, 2006
Messages
1,028
Diagnosis
10/2000
Country
CA
State
NL
City
Newfoundland
Mine started with difficulty pronouncing the word "lily".
 
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