Hensleemom
New member
- Joined
- Oct 7, 2022
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Garden Grove
Thank you so much for anyone who takes the time to read my post . So for the past 3 months I have been having thigh stiffness and leg ,hip and lower back pain on both sides specially the right side. My thigh looks like it has atrophy and now I’m starting to have fasciculations in both legs on and off all day. Specially when I walk or try to flex my muscles. If I try to hold my leg up or flex my whole legs shakes because it’s so weak.it’s becoming impossible to sleep because I keep walking up to my body shaking or it feels like a jolt. I also have Severe arm weakness on and off . Some days I can’t even lift my phone up. I also keep getting a weird bubble like feeling in my throat. Last week I seen a neurologist and he did a nerve study and he said it seems fine and I don’t need a emg but I’ve read on here that a lot of people have normal nerve study’s and still have als. What do you think my next step should be?