BoxersRule
Active member
- Joined
- Feb 3, 2008
- Messages
- 37
- Reason
- Learn about ALS
- Country
- US
- State
- al
- City
- birmingham
Are yall sick of me yet?
I am sooo tired of this roller coaster. My story in short reference b/c I am sure its been seen before- Had sporatic fascics 18 months ago, head to toe random thumps that went away (no hot spots). Came back 4 months ago- Saw a neuro 3 weeks ago. She was the Top Neuro "Chief of neurophysiology" at the big university here. The past few months I have had off and on shoulder pain w/ percieved weakness. I know it comes and goes because during my exam w/ the neuro I was NOT experiencing it , therefore I would have mentioned it. She did the neuro exam. All normal. Reflexes normal and symmetrical...etc. She tapped on all my muscles with a rubber hammer and could not get any fasics to appear. She had her eyelashes just about on my skin looking so closely. She gave me the diagnosed of BFS .. She said she did NOT need a EMG b/c of everything else clinically was Perfect also given my age- etc...(twenty-eight) and type of fasics I described..random ones, head to toe. (altho she could NOT see them clinically, she believed me).
Now some how my shoulder pain and discomfort is back- NO WEAKNESS that I can detect it just "Feels weak". I sit awkward when I type @ my desk and I think it might be it or the way I sleep. It comes and goes...I know. I know focusing on it makes it worse. My hand is just fine..its just like my shouder and bicept...I just hope she didnt miss any weakness during my exam. She commented on how strong I was and good muscle bulk in hands and feet etc. She was very confident w/ her diagnosed and didnt even suggest a follow up.
Does the normal exam and normal reflexes etc. point away from als? I would think when she did the hammer reflex thing on my left arm it would have shown something had I been already effected w/ als..?
I am sooooo scared. I know I may be repetitive...but I just need some support. I am a bit of a hyperchondriac...and I have bad anxiety.

ADG
Now some how my shoulder pain and discomfort is back- NO WEAKNESS that I can detect it just "Feels weak". I sit awkward when I type @ my desk and I think it might be it or the way I sleep. It comes and goes...I know. I know focusing on it makes it worse. My hand is just fine..its just like my shouder and bicept...I just hope she didnt miss any weakness during my exam. She commented on how strong I was and good muscle bulk in hands and feet etc. She was very confident w/ her diagnosed and didnt even suggest a follow up.
Does the normal exam and normal reflexes etc. point away from als? I would think when she did the hammer reflex thing on my left arm it would have shown something had I been already effected w/ als..?
I am sooooo scared. I know I may be repetitive...but I just need some support. I am a bit of a hyperchondriac...and I have bad anxiety.
ADG