Lily1967
New member
- Joined
- May 23, 2015
- Messages
- 7
- Reason
- Other
- Country
- AUS
- State
- VICTORIA
- City
- MELBOURNE
Hi everyone,
I am new here and am really sorry that you need to be on this site as it means you have this horrible illness and my heart goes out to you all.
I have been sick now for nearly 2 years, firstly suspected fibromyalgia, then MS. MS is a possibility but I don't show any lesions so the neurologist will not diagnose me with it. On my last visit, he noticed my symptoms are getting worse and that I will have to wait until July to have another MRI. He was very busy that day and as the appointment was coming to an end I asked him what he was thinking.....he quickly said you have upper motor neurone damage without doubt. I was running over time and didn't question it.
Now I have come home and tried to find out what that exactly means.
So my question is does anybody know does damage equal motor neurone disease?
or can damage just be damage unrelated to MND? Can this damage he is talking about still
be MS? He has told me various times that he will need to monitor my condition and is unsure of what it is.
Has anybody experienced this?
I am really sorry to drag it out, but I can't get an earlier appointment with him and am
concerned.
I hate coming to a site like this because I know you all have so much on your plates already.
Thank you for reading.
I am new here and am really sorry that you need to be on this site as it means you have this horrible illness and my heart goes out to you all.
I have been sick now for nearly 2 years, firstly suspected fibromyalgia, then MS. MS is a possibility but I don't show any lesions so the neurologist will not diagnose me with it. On my last visit, he noticed my symptoms are getting worse and that I will have to wait until July to have another MRI. He was very busy that day and as the appointment was coming to an end I asked him what he was thinking.....he quickly said you have upper motor neurone damage without doubt. I was running over time and didn't question it.
Now I have come home and tried to find out what that exactly means.
So my question is does anybody know does damage equal motor neurone disease?
or can damage just be damage unrelated to MND? Can this damage he is talking about still
be MS? He has told me various times that he will need to monitor my condition and is unsure of what it is.
Has anybody experienced this?
I am really sorry to drag it out, but I can't get an earlier appointment with him and am
concerned.
I hate coming to a site like this because I know you all have so much on your plates already.
Thank you for reading.