BoxersRule
Active member
- Joined
- Feb 3, 2008
- Messages
- 37
- Reason
- Learn about ALS
- Country
- US
- State
- al
- City
- birmingham
Hi there (28 yr old female)- I have been or had been feeling GREAT lately after my EMG. My story to refresh- I had/have experienced widespread twitching about 20 someting plus months ago- it went away on its on. Dont know how or why. Well 3 months or so into my pregnancy it came back Random thumps here and there no hot spots. Etc. Had 2 clinicals , strong as a ox, reflexes symmetrical etc. I was good with that- then freaked out again.
This time the cheif of neuro physiology did a EMG since I told her I had fasciculation all over. Random times. She didnt want to but she said I needed peace of mind. Well We did 10 muscles. 1 fasic was found. NOTHING ELSE. No abnormalities anywhere.
I picked up my EMG report and it says:
Indications for Electrodiagnostic Study:
***** ****** is a 28 year old female, who has noted twitching in random spots of her body at random times. This is worse in her calves and she also has some in her triceps, biceps and shoulder area. She denies cramps or weakness. She was initially seen on April 21, 2008 and was given the diagnosis of Benign Fasciculation Syndrome. She is also currently pregnant.
She has past medical history significant of OCD and ADD.
Her neurologic exam is completely normal. She is referred to evaluate for fasciculation syndrome. There are no contraindictation or limitations. Risks and benefits have been discussed with the patient.
EMG results:
1. The right medial gastrocnemius muscle reveals one fasiculation w/out any other spontaneous activity and normal motor unit potentials.
2.The right deltoid, triceps, biceps, FDI, APB, anterior tibialis, vastus lateralis, peroneus longus, and vastus medialis muscle show normal insertion activity and motor unit potentials with no spontaneous activity.
3. A monopolar needle electrode was used.
Interpretation of electroneurodiagnostic studies:
These electrophysiologic findings reveal one fasciculation in one muscle out of 10 muscles that were studied. There is not an increased amount of insertional activity, as would be seen in motor neuron disease such as amyotrophic lateral Sclerosis. THere are no previous test for comparison. The diagnosis is still 100% consistent with Benign fasiculation syndrome.
Dr.**** ******, MD
Board Certified EMG, EEG, EKG, MAGNETIC MRI and NCV.
Well I was doing GREAT! Then recently I started thinking about BULBAR ONSET. I called back and she said "Mrs.******, when you presented you had already presented w/ fasciculatons. Even if it was BBar onset your fasiculation and EMG would show ABNORMALITIES. I also read that on the HARVARD, the CLEAVELAND CLININC, and the MAYO website. My neuro explained if it "WAS" Bulbar onset- even if my bulbar EMG was clean if I had fascics all over ...the EMG would be abnormal going on almost lets 5 months this round of twitching and then a previous 20 something months ago with twitching.
The fasciculation she found appeared in isolation etc.
Why am I NOW freaking over bulbar- I guess because I read NUMEROUS pals had clean EMG with BULBAR? So this is contradictig EVERYTHING I have read and been told.
I dont understand. I had peace and now this CRAP is lurking in my head. I spend every second making sure I am not slurring and saying words correctly. I had NO UMN signs when tested by neuro. However if my fasiculations were occuring due to als she said that means I have ALL of the fasiculation occuring from UMN and LMN and the EMG would be abnormal at this stage.
SOMEONE feel me in. I feel ike jumping off a cliff and Im 5 days away from delivery.
My neuro told me @ some point I have to use my common sense and think I have jumped from limb onset to bulbar onset. She has ALS patients. 5 right now she is following.
I need help yall. Pleas....VERY DOWN.
This time the cheif of neuro physiology did a EMG since I told her I had fasciculation all over. Random times. She didnt want to but she said I needed peace of mind. Well We did 10 muscles. 1 fasic was found. NOTHING ELSE. No abnormalities anywhere.
I picked up my EMG report and it says:
Indications for Electrodiagnostic Study:
***** ****** is a 28 year old female, who has noted twitching in random spots of her body at random times. This is worse in her calves and she also has some in her triceps, biceps and shoulder area. She denies cramps or weakness. She was initially seen on April 21, 2008 and was given the diagnosis of Benign Fasciculation Syndrome. She is also currently pregnant.
She has past medical history significant of OCD and ADD.
Her neurologic exam is completely normal. She is referred to evaluate for fasciculation syndrome. There are no contraindictation or limitations. Risks and benefits have been discussed with the patient.
EMG results:
1. The right medial gastrocnemius muscle reveals one fasiculation w/out any other spontaneous activity and normal motor unit potentials.
2.The right deltoid, triceps, biceps, FDI, APB, anterior tibialis, vastus lateralis, peroneus longus, and vastus medialis muscle show normal insertion activity and motor unit potentials with no spontaneous activity.
3. A monopolar needle electrode was used.
Interpretation of electroneurodiagnostic studies:
These electrophysiologic findings reveal one fasciculation in one muscle out of 10 muscles that were studied. There is not an increased amount of insertional activity, as would be seen in motor neuron disease such as amyotrophic lateral Sclerosis. THere are no previous test for comparison. The diagnosis is still 100% consistent with Benign fasiculation syndrome.
Dr.**** ******, MD
Board Certified EMG, EEG, EKG, MAGNETIC MRI and NCV.
Well I was doing GREAT! Then recently I started thinking about BULBAR ONSET. I called back and she said "Mrs.******, when you presented you had already presented w/ fasciculatons. Even if it was BBar onset your fasiculation and EMG would show ABNORMALITIES. I also read that on the HARVARD, the CLEAVELAND CLININC, and the MAYO website. My neuro explained if it "WAS" Bulbar onset- even if my bulbar EMG was clean if I had fascics all over ...the EMG would be abnormal going on almost lets 5 months this round of twitching and then a previous 20 something months ago with twitching.
The fasciculation she found appeared in isolation etc.
Why am I NOW freaking over bulbar- I guess because I read NUMEROUS pals had clean EMG with BULBAR? So this is contradictig EVERYTHING I have read and been told.
I dont understand. I had peace and now this CRAP is lurking in my head. I spend every second making sure I am not slurring and saying words correctly. I had NO UMN signs when tested by neuro. However if my fasiculations were occuring due to als she said that means I have ALL of the fasiculation occuring from UMN and LMN and the EMG would be abnormal at this stage.
SOMEONE feel me in. I feel ike jumping off a cliff and Im 5 days away from delivery.
My neuro told me @ some point I have to use my common sense and think I have jumped from limb onset to bulbar onset. She has ALS patients. 5 right now she is following.
I need help yall. Pleas....VERY DOWN.
