Realllly hoping the docs are wrong
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flora
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You are all so beautiful
I can't begin to tell you all how much this interaction has meant to me. I do have a crazy family, and friends that all care so much about me but I still felt as if I had no one who could relate to what I am going through. I try not to talk to much to any of them about it because everybody always sees me as the fearless kind of person and from experience I know that if I am worried then everyone else loses it.
Now about more family stories....I can't believe people actually get a kick out of them. But then I am an avid Jerry Springer fan, so I guess I get it. I could tell you about the time my sister and I met Tori Amos because my sister refused to come out of a tree claiming she wasn't used to earth's atmosphere, or I could tell you about the time les peed on a cop. Oh I know I will tell you something about me (I wouldn't want to mislead you into thinking that I was very unlike my family).
A couple of years ago I was with my two best girlfriends at the gym. I was on a treadmill and tiff and erica were on mills on either side of mine. The bottom of my sweatpants got stuck in the tread and I fell backwards off of it. My pants stayed on the mill and I wasn't wearing underpants. The guy that was SUPPOSED to be spotting for another guy was just standing there with his mouth hanging open. Erica calmly got off of her mill and walked to the locker room. Tiff did the only other thing a true friend could do; she stood on the side of her mill and laughed so hard that there were tears rolling down her face. I tried to get my pants out of the mill to no avail. I I gathered up my pride and walked to the locker room.:mrgreen:
I have not been back to that gym.
I can't begin to tell you all how much this interaction has meant to me. I do have a crazy family, and friends that all care so much about me but I still felt as if I had no one who could relate to what I am going through. I try not to talk to much to any of them about it because everybody always sees me as the fearless kind of person and from experience I know that if I am worried then everyone else loses it.
Now about more family stories....I can't believe people actually get a kick out of them. But then I am an avid Jerry Springer fan, so I guess I get it. I could tell you about the time my sister and I met Tori Amos because my sister refused to come out of a tree claiming she wasn't used to earth's atmosphere, or I could tell you about the time les peed on a cop. Oh I know I will tell you something about me (I wouldn't want to mislead you into thinking that I was very unlike my family).
A couple of years ago I was with my two best girlfriends at the gym. I was on a treadmill and tiff and erica were on mills on either side of mine. The bottom of my sweatpants got stuck in the tread and I fell backwards off of it. My pants stayed on the mill and I wasn't wearing underpants. The guy that was SUPPOSED to be spotting for another guy was just standing there with his mouth hanging open. Erica calmly got off of her mill and walked to the locker room. Tiff did the only other thing a true friend could do; she stood on the side of her mill and laughed so hard that there were tears rolling down her face. I tried to get my pants out of the mill to no avail. I I gathered up my pride and walked to the locker room.:mrgreen:
I have not been back to that gym.
CindyM
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Reminds me of a friend I had who, when seh was in college, rented a cottage by a lake with a bunch of her girlfriends. Well, the evening was warm and the moon birh=ght so they decided to take a dip in the lake, sans swimsuits. what they didn't know was that a group of college guys had rented the cottage next door. Well, the guys came home from a party and quickly figured out what was going on so they parked their car facing the lake, high beams blazing, and dragged out flashlights to boot.
All the other girls had big beach towels to cover them from shoulder to knees. But my friend had just a little skimpy hand towel. But it did cover her face, so that's what she did. With her face covered, and only her face, she ran for the cottage. Her reasoning was this: the next time they caught sight of her, she knew she'd be fully clothed and with no way to identify her face, they would never know who the naked girl was at the lake.
All the other girls had big beach towels to cover them from shoulder to knees. But my friend had just a little skimpy hand towel. But it did cover her face, so that's what she did. With her face covered, and only her face, she ran for the cottage. Her reasoning was this: the next time they caught sight of her, she knew she'd be fully clothed and with no way to identify her face, they would never know who the naked girl was at the lake.
flora
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The plucking is driving me nuts
When the plucking started a year ago I thought "well this is strange", but it didn't hurt so I just wrote it off as nerves (my son had just gone roaring into puberty). I didn't get them to much. Now it's a constant thing, going on all the time in my calves, feet, and thighs. It has started to happen in my left arm up by my shoulder and making my asl letters is getting hard.
Starting about two days ago I started to get a....I don't really know how to explain it. Like a tickling in my left foot and front of the thigh. Kind of like the feeling you get when you are on a roller coaster or going over a hill real fast, and my foot is vibrating. I can't see it I can feel it and it's driving me crazy. Do you have any ideas on how to make it stop?
When the plucking started a year ago I thought "well this is strange", but it didn't hurt so I just wrote it off as nerves (my son had just gone roaring into puberty). I didn't get them to much. Now it's a constant thing, going on all the time in my calves, feet, and thighs. It has started to happen in my left arm up by my shoulder and making my asl letters is getting hard.
Starting about two days ago I started to get a....I don't really know how to explain it. Like a tickling in my left foot and front of the thigh. Kind of like the feeling you get when you are on a roller coaster or going over a hill real fast, and my foot is vibrating. I can't see it I can feel it and it's driving me crazy. Do you have any ideas on how to make it stop?
CindyM
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Rest makes the twitches and vibrations simmer down for me. Plus the doctor gave me quinine tablets and that helps a lot too. He said I could drink tonic water, which is made of quinine, but I'd have to drink it by the gallons in order to feel any effect.
Peg B
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Hi Flora,
You can get quinine in Tonic Water. Faygo makes it the cheapest I've found, 86 cents and 0 calories if you get the diet version. I forgot to buy some and woke up last night and tonight with cramps. So I won't forget tomorrow. Think of a gin and tonic without the gin. Put a lime in it and it tastes the same. Best Wishes, Peg
You can get quinine in Tonic Water. Faygo makes it the cheapest I've found, 86 cents and 0 calories if you get the diet version. I forgot to buy some and woke up last night and tonight with cramps. So I won't forget tomorrow. Think of a gin and tonic without the gin. Put a lime in it and it tastes the same. Best Wishes, Peg
Al
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Hey Big Al. Someone posted that they couldn't get over the counter Quinine in their state. You too could make thousands of dollars by becoming a drug supplier to the stars. And these are legal drugs. No fear of jail. No fear of hits on your family or yourself. A great opportunity to get in on the ground floor of a potentially fabulous source of income and best of all you won't be called a scum bag scammer on sites like this. Imagine the untold riches you could have. Hope you're chuckling as much now as much as I was writing this. Have a good day buddy.
AL.
AL.
MtPockets
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Alright, that's it's I'm a drug dealer. Only a small mark up on the Quinine.
Then again if they can't sale it in those states, probably illegal to mail it there. Dang I'm out of business already.
Me and my wife were laughing so hard we were crying. Picture me as a drug dealer. :mrgreen:
You made my day AL. :-D :-D :-D :-D
God Bless
Capt AL
Then again if they can't sale it in those states, probably illegal to mail it there. Dang I'm out of business already.
Me and my wife were laughing so hard we were crying. Picture me as a drug dealer. :mrgreen:
You made my day AL. :-D :-D :-D :-D
God Bless
Capt AL
flora
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Choking on my own spit!
Ok. Now you guys are going to see just how blond I can be. A couple of weeks ago I woke up out of a sound sleep choking and coughing. I apparently swallowed my spit. Nice. I have been choking on the strangest things lately. Coffee, water, pop.....not anything solid (is soup solid?) just weird crap. It's not like I don't know how to swallow, I have been doing it for some time now without any supervision. It's kinda like....I feel like I am trying to breath and swallow at the same time. My mouth keeps watering alot and my jaw literally gets tired when I chew...this shouldn't be happening, have a very strong mouth from talking aimlessly for hours about absolutely nothing. Is this something I should be telling the ALS specialist when I go see him? How do I stop choking on water? Do I just swallow slower? And how do I get my mouth to stop watering? Is this even something that happens to people with ALS? I think the doctors are all wrong and can't wait for Dr. Pioro (the ALS spec) to tell me that I am right. I just don't think my symptoms match. I hear it doesn't hurt, well my legs cramp and my arm and hand cramp. They say that your nervous system is not affected but my legs will jump if you so much as touch my knees or feet. Any feelings, ideas, remarks? Do you want me to shut up yet?:-D
Ok. Now you guys are going to see just how blond I can be. A couple of weeks ago I woke up out of a sound sleep choking and coughing. I apparently swallowed my spit. Nice. I have been choking on the strangest things lately. Coffee, water, pop.....not anything solid (is soup solid?) just weird crap. It's not like I don't know how to swallow, I have been doing it for some time now without any supervision. It's kinda like....I feel like I am trying to breath and swallow at the same time. My mouth keeps watering alot and my jaw literally gets tired when I chew...this shouldn't be happening, have a very strong mouth from talking aimlessly for hours about absolutely nothing. Is this something I should be telling the ALS specialist when I go see him? How do I stop choking on water? Do I just swallow slower? And how do I get my mouth to stop watering? Is this even something that happens to people with ALS? I think the doctors are all wrong and can't wait for Dr. Pioro (the ALS spec) to tell me that I am right. I just don't think my symptoms match. I hear it doesn't hurt, well my legs cramp and my arm and hand cramp. They say that your nervous system is not affected but my legs will jump if you so much as touch my knees or feet. Any feelings, ideas, remarks? Do you want me to shut up yet?:-D
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