flora
Active member
- Joined
- Oct 12, 2007
- Messages
- 31
- Reason
- Learn about ALS
- Country
- US
- State
- ohio
- City
- north olmsted
About a year and 1/2 ago I noticed that I was getting clumsy; falling down stairs and tripping alot. I thought I must just be getting old (I am 35). I then started to have severe cramps in my right foot and calf while I was sleeping. Then I started having them when I tried to do my stretches. Growing up I was a gymnist, cheerleader, and on the swimteam so I have always been very flexible. I was shocked when I started to lose flexibility and called my mom. She laughed and told me "welcome to middle age). I called my doctor and made an appt. Everything seemed to be ok, she did a cbc and all. About 3mnths later I started to get a plucking sensation in my leg and face, though not painful it drives me nuts. My doc orders an mri and schedules with a nuero. He said my mri is fine and I am having panic attacks. I don't think that I am a panic attack kinda girl (or wasnt) but went with it. He put me on effexor, and my friends were mad. I started to get cramps in my right calf...he tells me it's just the panic attacks and to ask my pcp for some muscle relaxers. I fall down the stairs again, call the neuro, he says to watch where I am stepping. I start noticing that it is hard to walk up the stairs, my legs feel like there are weights on them and start to hurt by just the middle of the steps. Anyway, this goes on and on and on. I fall down the stairs again and hurt my back and get admitted. The neuro checks my reflexes, says I have hyperrelfexia in both legs and one arm.....on to about a gazillion tests, none of them fun (one of the docs was pretty nice to look at though). Doc came in with a bunch of other docs. Says we believe you have als and they leave. I get discharged from the hospital and my doc makes me see a pt and tells me I have to go see another neuro who specializes in als. I think that this can't be happening to me, I am to young. My kids are to young to lose thier mom. None of my friends or family is cool with this. And I just flat out don't have the time to die.
Now onto my question....could anything else be causing this? Oh yeah, now my left two middle fingers are curled toward my palm and it feels like they are attached to rubberbands pulling on them. Again, not painful (except for the cramps I am getting in my forarm) but really aggravating. Thankyou all so much for reading all of this and I appreciate any kind of info or opinion offered.:mrgreen:
Now onto my question....could anything else be causing this? Oh yeah, now my left two middle fingers are curled toward my palm and it feels like they are attached to rubberbands pulling on them. Again, not painful (except for the cramps I am getting in my forarm) but really aggravating. Thankyou all so much for reading all of this and I appreciate any kind of info or opinion offered.:mrgreen: