kds4
New member
- Joined
- Mar 6, 2011
- Messages
- 7
- Reason
- PALS
- Diagnosis
- 02/2011
- Country
- US
- State
- PA
- City
- Ottsville
Re: New? Introduce Yourself - Say Hello
Hello-
I am a newly diagnosed ALS patient, struggling to figure out the best way to tell my family. I am 37 years old with familial ALS. My mother lost her battle with ALS almost 20 years ago at the age of 48, her father lost his battle at the age of 38. I am the youngest of four "girls." My sisters and my father need to know about my diagnosis, but it breaks my heart that I'm going to put them through this torture again. Thankfully, my husband and I decided not to have children, due to the possibility of passing on this gene. If anyone out there has any advice for me, I would really appreciate it.
Hello-
I am a newly diagnosed ALS patient, struggling to figure out the best way to tell my family. I am 37 years old with familial ALS. My mother lost her battle with ALS almost 20 years ago at the age of 48, her father lost his battle at the age of 38. I am the youngest of four "girls." My sisters and my father need to know about my diagnosis, but it breaks my heart that I'm going to put them through this torture again. Thankfully, my husband and I decided not to have children, due to the possibility of passing on this gene. If anyone out there has any advice for me, I would really appreciate it.