mich5
Distinguished member
- Joined
- Apr 20, 2012
- Messages
- 275
- Reason
- PALS
- Diagnosis
- 01/2012
- Country
- US
- State
- west
- City
- mid
Moderator's note: This topic was explored some months ago in this thread.
dr bedlack designated eric valor as the lead investigator for the rch4 review on behalf of alsuntangled (alsu). a review for alsu should be conducted in the following manner, according to the alsu website (2 minutes into the 7 minute animation it states how reviews are conducted):
ALSUntangled.com - How To Participate137
the rch4 review was not even remotely conducted in this manner. the lead investigator posted a blog calling rch4 a scam and then contacted users of the drug. due to the way the alsu review was conducted, the voluntary funding sources for rch4 immediately stopped. the funding was not stopped due to 'lil ole eric' but because the lead investigator of alsuntangled, a respected organization in the als community, called rch4 a scam.
dr bedlack was given confidential files showing years of data by the rc group.
the definition of scam is a dishonest way to make money by deceiving people. the rc group never charged pals for rch4 and never made any claims to the pals who took it that rch4 would stop, reverse, or cure als.
dr bedlack needs to disassociate alsu from eric valor and make a statement that rch4 is not a scam.
below is a link that has additional information on this:
Bedlack
dr bedlack designated eric valor as the lead investigator for the rch4 review on behalf of alsuntangled (alsu). a review for alsu should be conducted in the following manner, according to the alsu website (2 minutes into the 7 minute animation it states how reviews are conducted):
ALSUntangled.com - How To Participate137
the rch4 review was not even remotely conducted in this manner. the lead investigator posted a blog calling rch4 a scam and then contacted users of the drug. due to the way the alsu review was conducted, the voluntary funding sources for rch4 immediately stopped. the funding was not stopped due to 'lil ole eric' but because the lead investigator of alsuntangled, a respected organization in the als community, called rch4 a scam.
dr bedlack was given confidential files showing years of data by the rc group.
the definition of scam is a dishonest way to make money by deceiving people. the rc group never charged pals for rch4 and never made any claims to the pals who took it that rch4 would stop, reverse, or cure als.
dr bedlack needs to disassociate alsu from eric valor and make a statement that rch4 is not a scam.
below is a link that has additional information on this:
Bedlack
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