rate of progression?

Status
Not open for further replies.

Just J

Distinguished member
Joined
Oct 30, 2007
Messages
300
Reason
DX UMND/PLS
Diagnosis
01/2010
Country
US
State
MD
City
Havre de Grace
I know that it is different with everyone but what is considered a slow rate of progression vs. a fast rate of progression. My hubbie has gone from a very athletic man 3 yrs ago to using a cane as of a month ago and wheelchair is probably in the not too distant future. Just wondering if this is slow, moderate, or fast, relatively speaking.
 

Jennifer51

Distinguished member
Joined
Jul 7, 2008
Messages
441
Reason
PALS
Diagnosis
03/2008
Country
UK
State
England
City
London
I know that it is different with everyone but what is considered a slow rate of progression vs. a fast rate of progression. My hubbie has gone from a very athletic man 3 yrs ago to using a cane as of a month ago and wheelchair is probably in the not too distant future. Just wondering if this is slow, moderate, or fast, relatively speaking.

We have a friend with als (I now have bulbar diagnosed earlier this year) Our friend was diagnosed 3 years ago and has been totally immobile for at least the last year...he can barely feed himself now...so I think it seems like your husband is slow progression to me....Our friend was a sports trainer so was very fit before all this and only 36....
I understand what you mean about wanting to know if progression is slow or fast....I just want reasurance that I am slow as well, but it is still very early days for me.
Keep it up....
 
Status
Not open for further replies.
Top