edjohnson
Active member
- Joined
- Nov 18, 2011
- Messages
- 48
- Reason
- PALS
- Diagnosis
- 10/2011
- Country
- US
- State
- nc
- City
- emerald isle
A few open slots exist for a teleconference with a leading authority on how the HIV crisis gained ground breaking support from pharmaceutical companies and the FDA.
Here is an opportunity to learn from, brainstorm, and plan for what ALS patients and supporters should be doing to achieve early access to promising treatments. We are fortunate to have engaged an ALS patient who has the hands-on HIV crisis Executive Management/Leadership experience and the proven credentials to help our cause,… Treat PALS Now.
If you are interested in attending this one hour call which will be held on the 27th or 29th, please provide me with your name, e-mail address, city, state, and phone number.
Please respond by Saturday the 24th, …first come first served.
Please confirm that you will be willing to work with us a minimum of one hour per week.
From this call we will begin the process of determining how we can reproduce for our disease the winning strategies that saved thousands of lives during the HIV crisis.
Thank you.
Ed
Here is an opportunity to learn from, brainstorm, and plan for what ALS patients and supporters should be doing to achieve early access to promising treatments. We are fortunate to have engaged an ALS patient who has the hands-on HIV crisis Executive Management/Leadership experience and the proven credentials to help our cause,… Treat PALS Now.
If you are interested in attending this one hour call which will be held on the 27th or 29th, please provide me with your name, e-mail address, city, state, and phone number.
Please respond by Saturday the 24th, …first come first served.
Please confirm that you will be willing to work with us a minimum of one hour per week.
From this call we will begin the process of determining how we can reproduce for our disease the winning strategies that saved thousands of lives during the HIV crisis.
Thank you.
Ed