Llynnrn
New member
- Joined
- Dec 3, 2022
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NV
- City
- Las vegas
I’ve read a great deal of posts and would like to say to those that have been diagnosed with als or any life altering nmd or those with a family member who has been diagnosed, I am sending positive thoughts and prayers your way.
I am an FNP and feel that my clinical knowledge and anxiety are working against me. I am 36 yo. I developed a severe headache four weeks ago that resulted in an er and urgent care visit. After a negative ct, cta, labs my pcp ordered an mri of the brain and neck. About ten days in I developed a feeling of arm fatigue and weakness. As well as generalized paresthesias. This spread to my legs over the next week. I get intermittent burning in my arms as well.
It is more difficult to do tasks but I am not unable to do anything which seems to be a hard stop in this forum for als. I feel like my muscles are atrophying/melting away. They are burning and constantly feel uncomfortable. I started amitriptyline to help with the burning but honestly all it’s really done is help me sleep and make me a little numb mentally.
I now have muscle twitching. It occurs in my feet calves, thighs, biceps, lip. It happens consistently throughout the day to different body parts. I can intermittently see it but not consistently. I have a negative mri neck. Mri of brain showed one very small white matter lesion. (Nonspecific) Normal cbc cmp esr crp autoimmune panel.
I’m taking a daily multivitamin. I lost my appetite for a while and dropped fifteen lbs over the course of a month. I now force myself to eat with no actual appetite. I saw a neurologist whom didn’t give me a lot of insight, wasn’t impressed by the brain mri, diagnosed me with acute neuropathy, ordered an emg/nerve study. I have an appt in a month.
I’ve made myself continue working, living, functioning as I know I have to but on the inside I’m a mess. I’m honestly looking for insight/guidance while I await the testing. The symptoms seem to be progressing so rapidly and I’m pretty dang scared. I appreciate any insight you can offer in regards to these symptoms and the rate at which they developed in association with a possible als diagnosis. Thanks for your time
I am an FNP and feel that my clinical knowledge and anxiety are working against me. I am 36 yo. I developed a severe headache four weeks ago that resulted in an er and urgent care visit. After a negative ct, cta, labs my pcp ordered an mri of the brain and neck. About ten days in I developed a feeling of arm fatigue and weakness. As well as generalized paresthesias. This spread to my legs over the next week. I get intermittent burning in my arms as well.
It is more difficult to do tasks but I am not unable to do anything which seems to be a hard stop in this forum for als. I feel like my muscles are atrophying/melting away. They are burning and constantly feel uncomfortable. I started amitriptyline to help with the burning but honestly all it’s really done is help me sleep and make me a little numb mentally.
I now have muscle twitching. It occurs in my feet calves, thighs, biceps, lip. It happens consistently throughout the day to different body parts. I can intermittently see it but not consistently. I have a negative mri neck. Mri of brain showed one very small white matter lesion. (Nonspecific) Normal cbc cmp esr crp autoimmune panel.
I’m taking a daily multivitamin. I lost my appetite for a while and dropped fifteen lbs over the course of a month. I now force myself to eat with no actual appetite. I saw a neurologist whom didn’t give me a lot of insight, wasn’t impressed by the brain mri, diagnosed me with acute neuropathy, ordered an emg/nerve study. I have an appt in a month.
I’ve made myself continue working, living, functioning as I know I have to but on the inside I’m a mess. I’m honestly looking for insight/guidance while I await the testing. The symptoms seem to be progressing so rapidly and I’m pretty dang scared. I appreciate any insight you can offer in regards to these symptoms and the rate at which they developed in association with a possible als diagnosis. Thanks for your time
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