Rapid Progression

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shelly2612

Distinguished member
Joined
Aug 31, 2008
Messages
103
Reason
CALS
Diagnosis
09/2008
Country
US
State
Ohio
City
Waterloo
This is not a good day, This disease is Progressing faster than we expected, within 7 days he has gone from being semi self sufficient to not even being able to brush his own teeth, The Neuro at the ALS clinic at OSU, moved his next appointment from November to next week because of the rapid progression. I feel so helpless.
 

BethU

Extremely helpful member
Joined
May 11, 2008
Messages
2,644
Reason
PALS
Diagnosis
05/2008
Country
US
State
California
City
Los Angeles
Shelly, I'm so sorry about this rapid progression. That is so sad. I am saying prayers for you.

Hang in there,
BethU
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
I am sorry to hear this. Maybe the clinic will have some ideas on how to slow things down. Hugs, Cindy
 

jpruppe

Member
Joined
Apr 23, 2008
Messages
17
Reason
PALS
Diagnosis
04/2008
Country
US
State
VA
City
Harrisonburg
More rest?

I too am suffering from progression of weakness in legs, arms, and hands. Eating even mushy apple sauce or baby food is getting more difficult. Mucus, choking, and dry eyes add to my discomfort.

I am trying to follow the Clinic's advice to save my energy for only the really necessary things. Though I try to do minor chores to help out my wife/caregiver, I am gradually letting her do more.

I still enjoy very slow walks on level ground with two walking sticks. But they are getting shorter and slower!

Fare thee well!:D
 
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