Wmjsmith
New member
- Joined
- Jan 12, 2017
- Messages
- 9
- Reason
- Learn about ALS
- Country
- Us
- State
- Nd
- City
- Bismarck
I am not diagnosed ALS. In July I began having swallowing problems. Diagnosed esophageal motility disorder or unknown origin. I've lost 60 pounds to date. Very poor nutrition as I have a hard time getting anything down including liquids. Blood test achr for myasthenia Gravas was 0.0. 3 weeks ago Mayo Clinic did full blood work ups all within normal ranges. Primary doc noted no tongue abnormalities or fisculations. 4/4 strength on exam. Negative Hoffman and babinski normsl refleces. Barium swallow was normal.
I have had jaw pain for around a year. Dentist said tmj.
So I've been dealing with that but no other symptoms until 3-4 days ago I became very weak. Pain when walking in both quads. Both biceps have the feeling after a strenuous workout but I haven't done anything. Yesterday right side abdomen pain. Today it's back neck and shoulders. Noticed random twitching all over. Left forearm and hand feeling off/weak. I have a hard time breathing when I lie down.
I can stand on my toes, walk on my heels, open jars both hands, do push-ups, jog short distance, pickup items of various size and weight fine.
My muscles are clearly diminished in size from this summer. My wife says I look like a cancer patient. I have clearly lost strength.
So what do I make of this sudden onset of weakness and twitching? I've read your primer on als and don't know what to think. I clearly have abnormal weight loss and muscle reduction. I have twitching but it's random and all over. I feel weak but passed clinical review 3 weeks ago. What do I make of this?
I have had jaw pain for around a year. Dentist said tmj.
So I've been dealing with that but no other symptoms until 3-4 days ago I became very weak. Pain when walking in both quads. Both biceps have the feeling after a strenuous workout but I haven't done anything. Yesterday right side abdomen pain. Today it's back neck and shoulders. Noticed random twitching all over. Left forearm and hand feeling off/weak. I have a hard time breathing when I lie down.
I can stand on my toes, walk on my heels, open jars both hands, do push-ups, jog short distance, pickup items of various size and weight fine.
My muscles are clearly diminished in size from this summer. My wife says I look like a cancer patient. I have clearly lost strength.
So what do I make of this sudden onset of weakness and twitching? I've read your primer on als and don't know what to think. I clearly have abnormal weight loss and muscle reduction. I have twitching but it's random and all over. I feel weak but passed clinical review 3 weeks ago. What do I make of this?