rapid development of ALS

[irinakur69]

Hello everyone!!!
Two months ago I was full of strength and health.
A week after the New Year I began to notice changes in my body. My arms became very weak, I began to lose my balance when going down the stairs. Every day the weakness increased. I began examinations, but all the examinations did not give any results.
Two days ago I was diagnosed with ALS. I can't believe that this disease can develop so quickly. My arms are not working well at all. Is it really possible? In two months I became disabled...

 

[Nikki J]

That is certainly very quick but also sadly possible. I hope that your diagnosis came from a neuromuscular expert after a diagnostic emg and more tests to rule out other things. It is important to be sure as you would not want them to miss something more treatable.

I am very sorry

 

[TLARRI1]

Hello, and I’m sorry to hear about your situation. Last April, my wife and I, were on vacation in Niagara Falls, then we went to New York City, for a few days. We both were walking around and having a great time. Fast forward to now, my wife can no longer walk, feed herself, or bathe herself. To me it seems her condition worsened very quickly.

 

[Kittyboots13]

I'm so sorry to hear about both your stories and the fast progression of this horrible disease. I was just diagnosed in February after my second EMG with a neurologist to have it confirmed as ALS. I was in shock to even hear this. My symptoms started last year, fatigue at first, then foot drop in May, leg weakness in July, cramping in my legs, arms and back. from October to now my foot drop and walking has gotten weaker and climbing the stairs and breathing. I was told everyone progresses differently, but I see myself getting progressively worse. when diagnosed were any of you prescribed Radicava and Riluzole? My neurologist also informed me that when we are diagnosed that it was probably dormant in our bodies for at least a year which is concerning. Hearing your stories is concerning.

 

[JAM]

I’m sorry to hear about your declining health. Did you get a confirmed ALS dx? Was an EMG performed?

My husband was dx in September with limb onset but I am wondering if he is actually bulbar bc he is very difficult to understand and he seems to be progressing rapidly.

It’s different for everyone. I hope you have a good support network (and as a CAL’s, I hope they have a good support network as well!)