- Joined
- May 7, 2017
- Messages
- 1,884
- Reason
- Lost a loved one
- Diagnosis
- 05/2017
- Country
- CA
- State
- AB
- City
- CALGARY
Dave,
Your post has me smiling. I am so happy that you are slow progressing overall and with a bit of help from Edaravone/Radicava. I am not sure why, but I feel that the drug has been given a bad or skeptical sort of air around it. Again, not sure why.
My husband and I went to Japan to start initial treatment and met with Dr. Yoshino personally. He is a truly lovely and honest man. There were patients at his clinic from all over the world (U.S., Beirut, Taiwan, Canada, Iran and of course Japan to name a few) and I am still in contact with some of them today. While they have not stopped progressing, they, too, have been slow. We all think it is due to the drug.
Thank you for updating.
Your post has me smiling. I am so happy that you are slow progressing overall and with a bit of help from Edaravone/Radicava. I am not sure why, but I feel that the drug has been given a bad or skeptical sort of air around it. Again, not sure why.
My husband and I went to Japan to start initial treatment and met with Dr. Yoshino personally. He is a truly lovely and honest man. There were patients at his clinic from all over the world (U.S., Beirut, Taiwan, Canada, Iran and of course Japan to name a few) and I am still in contact with some of them today. While they have not stopped progressing, they, too, have been slow. We all think it is due to the drug.
Thank you for updating.
