Babycakes
Active member
- Joined
- Mar 24, 2017
- Messages
- 60
- Reason
- DX MND
- Diagnosis
- 04/2017
- Country
- US
- State
- CA
- City
- Pacifica
Hey,
I started the oral Radicava trial 2 weeks ago. It’s structured similar to IV infusions...14 on, 14 off then 10 of 14 on and 14 off.
Today is my first day without drug and I’m exhausted. It could be a number of things...but I wondered if this is common during the drug free period.
Btw I’m happy to answer any questions about the study...i Believe they are still recruiting. I hope it’s successful, it would be a huge game changer.
Kim
(I’m LMN limb onset. Super slow progression. Diagnosed 9/2018)
I started the oral Radicava trial 2 weeks ago. It’s structured similar to IV infusions...14 on, 14 off then 10 of 14 on and 14 off.
Today is my first day without drug and I’m exhausted. It could be a number of things...but I wondered if this is common during the drug free period.
Btw I’m happy to answer any questions about the study...i Believe they are still recruiting. I hope it’s successful, it would be a huge game changer.
Kim
(I’m LMN limb onset. Super slow progression. Diagnosed 9/2018)