Turtals
Member
- Joined
- Dec 11, 2018
- Messages
- 18
- Reason
- CALS
- Diagnosis
- 12/2016
- Country
- US
- State
- MA
- City
- Newton
Was hoping for feedback from this useful group on their experience with radiation therapy for secretion management. To date, we have been managing my PALS secretions with a combination of scopolamine patches, glyco subQ injections (pills were not effective and he now takes injections every 4 hours even through the night), mucinex, suction machine, etc.
My PALS asked his neurologist about ablation of salivary glands and we went int last week to have a radiation therapy consult and CT simulation. He will be starting a 5-day course of RT to his parotid on one side next week.
I was just curious about the experience of other PALS that have gone through this - any advice, things to look out for and results.
Thanks!
My PALS asked his neurologist about ablation of salivary glands and we went int last week to have a radiation therapy consult and CT simulation. He will be starting a 5-day course of RT to his parotid on one side next week.
I was just curious about the experience of other PALS that have gone through this - any advice, things to look out for and results.
Thanks!