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fiddleplayer51

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Mar 24, 2008
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337
Diagnosis
03/2008
Country
US
State
VA
City
Harrisonburg
My PALS received this email from the Clinical Research Coordinator at the UVA Dept. of Neurology:

I heard you were interested in ALS trials.
We have a trial enrolling now. To be eligible, you must
have had ALS symptoms less than 24 months, no diabetes or
heart problems. Also you will need to be able to swallow a
pill, and not on a ventilator. Vital Capacity of 70% or
higher. Be willing to come to all the appointments, which
would be 12 over a 10 month period. Weekly at first, to
insure tolerability, then every other week, then monthly.
The drug is R+Pramipexole. There is a 1/4 chance of
placebo for 4 of the 10 months the other 3/4 will either be
on 300mg, 150mg, or 50mg. Everyone will have 1 month on
placebo.
I will attach our consent for you to look over and get more
specifics.


Kristen E. Keller, CRC
Clinical Research Coordinator
Department of Neurology
University of Virginia
PO Box 800394 (USPS)
3100 Hospital Drive (courier)
Charlottesville, VA 22908
434-924-5717 (office)
434-982-1726 (fax)
[email protected]


My PALS is not planning on participating since the frequent trips are too tiring and the pill swallowing is problematic.

Take care,
Jane
 

Jennifer51

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Joined
Jul 7, 2008
Messages
441
Reason
PALS
Diagnosis
03/2008
Country
UK
State
England
City
London
new drug trials...this is encouraging

I am sure most of you with more experience will have found this website
www.clinicaltrials.gov
I found it most encouraging to see that so much work IS actually being done behind the scenes......I know trials are not the total answer, but at least it gives us all some hope. I think the bulk of these trials are based in USA, but I also looked on the mndassociation website for the UK and they show some trials which are also across europe
some of the trials I found, based all over the place, and there are many more, were for
Arimoclomol ...compay CytRx
ONO-2506PO----ONO pharmaceuticals
Myogane ----- Phytopharm PLC
TR019622----Trophos
Ceftriaxone

Keep hope alive.......Jennifer51
 
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