Re: Questions Upon New Dx
Paula-
Welcome. I'm also newly diagnosed. This is a wonderful community of PALS (Persons with ALS) and CALS (Caregivers). Sorry for the reason you're here, but glad you're here.
As to the questions you should ask, let me ask you some questions first. How old is your father? How long has he had symptoms? What type of ALS (i.e., limb onset or "bulbar"- i.e., is it in his hands and/or feet, or is his speech and swallowing affected)? Where are you located, i.e. USA, Canada, or somewhere else?
Basically, what you will need to discuss with the doc is (1) the exact basis of the diagnosis, i.e., the extent of testing to rule out other possibilities; (2) how certain the diagnosis is, which has to do with how far it has developed; (3) getting a second opinion from a recognized ALS expert, which can either be by referral or your own investigation; and (4) a treatment plan, including whether it is adviseable to take Rilutek, the one drug available to treat ALS (there are plusses and minuses), what supplements are useful and what dietary changes should be made.
It is all very overwhelming, I'm pretty overwhelmed myself. Don't try to learn too much all at once. The people on this Board can help you with locating resources in your area. My best wishes to you and your dad.
Dave