ecutchins
Active member
- Joined
- Sep 11, 2013
- Messages
- 33
- Reason
- PALS
- Diagnosis
- 11/2013
- Country
- US
- State
- Minnesota (MN)
- City
- Fridley
I've been seen by a local neurologist and he has referred me to the Mayo Clinic. I tend to completely forget any questions I have until after the visit. I also don't know what to ask in this case.
Here are my symptoms:
Weakness in both arms with the right being the most severe. I can't raise my right arm above my shoulder.
Fine motor skills in both hands are just about completely gone.
Muscle atrophy in hands, arms, shoulders and upper legs.
Increased saliva production. I've had dry mouth for years until the last month or so.
Foot drop on the right side.
I also have an odd feeling in the upper right chest and abdomen. It's kind of like a muscle contraction or tightness that doesn't change.
I've also noted that whenever I get stressed that impact on my arms is greater.
My EMG's were done in two sessions. The first was right arm only and the second was left arm and both legs.
The neurologist told me that after doing the right arm that he suspected ALS but after the second EMG he didn't know what to think because of all the indications. The diagnostic code that my insurance was filed under was for muscle wasting disease. So here is what the neurologist told me:
EMG of right arm indicated ALS.
Carpal tunnel in right wrist.
Ulnar nerve entrapment in left arm.
Neuropathy in both feet. I'm diabetic and have had neuropathy for several years with no changes.
What I'd like to do is put together a list of questions to ask. So what questions did you ask, what did you wish you asked or any other thing you can think of.
Thanks
Here are my symptoms:
Weakness in both arms with the right being the most severe. I can't raise my right arm above my shoulder.
Fine motor skills in both hands are just about completely gone.
Muscle atrophy in hands, arms, shoulders and upper legs.
Increased saliva production. I've had dry mouth for years until the last month or so.
Foot drop on the right side.
I also have an odd feeling in the upper right chest and abdomen. It's kind of like a muscle contraction or tightness that doesn't change.
I've also noted that whenever I get stressed that impact on my arms is greater.
My EMG's were done in two sessions. The first was right arm only and the second was left arm and both legs.
The neurologist told me that after doing the right arm that he suspected ALS but after the second EMG he didn't know what to think because of all the indications. The diagnostic code that my insurance was filed under was for muscle wasting disease. So here is what the neurologist told me:
EMG of right arm indicated ALS.
Carpal tunnel in right wrist.
Ulnar nerve entrapment in left arm.
Neuropathy in both feet. I'm diabetic and have had neuropathy for several years with no changes.
What I'd like to do is put together a list of questions to ask. So what questions did you ask, what did you wish you asked or any other thing you can think of.
Thanks