citygal
New member
- Joined
- Jun 30, 2009
- Messages
- 1
- Reason
- Learn about ALS
- Country
- US
- State
- NY
- City
- NY
Hi all,
I'm 28 years old and newly diagnosed with spastic paraparesis. I have been having symptoms for a very long time and only recently saw several neurologists (including a neuromuscular specialist) because it was getting difficult to function and was given this diagnosis. Things really escalated when I fell at work and had to go to the ER in an ambulance. I haven't been cleared by neurologist to go back to work yet.
My question is, how do you explain this disorder to other people? I hadn't even told family members about it, and now I am faced with having to explain to coworkers why I am so stiff and clumsy. On the one hand I want to be open with people and answer questions (I'm tired of pretending that I feel ok) and on the other hand I don't want to be seen as "the sick one".
Another question I have (sorry!) is how much better I can expect to feel with treatment. My neurologist seems very vague when I ask her this. Thank you so much.
I'm 28 years old and newly diagnosed with spastic paraparesis. I have been having symptoms for a very long time and only recently saw several neurologists (including a neuromuscular specialist) because it was getting difficult to function and was given this diagnosis. Things really escalated when I fell at work and had to go to the ER in an ambulance. I haven't been cleared by neurologist to go back to work yet.
My question is, how do you explain this disorder to other people? I hadn't even told family members about it, and now I am faced with having to explain to coworkers why I am so stiff and clumsy. On the one hand I want to be open with people and answer questions (I'm tired of pretending that I feel ok) and on the other hand I don't want to be seen as "the sick one".
Another question I have (sorry!) is how much better I can expect to feel with treatment. My neurologist seems very vague when I ask her this. Thank you so much.