Elizabeth555
New member
- Joined
- Aug 14, 2008
- Messages
- 6
- Reason
- CALS
- Diagnosis
- 08/2008
- Country
- US
- State
- OH
- City
- Akron
Hi everyone:
I was hoping some of you could share your experiences/stories about working (or needing to stop) while caring for your PALS.
I work full time and my husband has had ALS for just over two years. We have a group of great caregivers, but his condition is deteriorating to the point where I think he will be bedridden and unable to walk soon. When this happens, I will lose several of my caregivers for various reasons. I have tried to "solve" this problem, but keep coming back to the fact that I may need to stop working to take care of him myself, which will be very hard financially on us, but is probably the best choice.
Anyway, I would love to hear your situations and/or stories about what happened to you and why you made the decisions you did. Did you stop working because you decided to, or did you have no other choice?
I would also like to mention that flex time or special accommodations by my workplace is not possible.
This forum is great and I look forward to hearing about your experiences and advice.
Thanks
I was hoping some of you could share your experiences/stories about working (or needing to stop) while caring for your PALS.
I work full time and my husband has had ALS for just over two years. We have a group of great caregivers, but his condition is deteriorating to the point where I think he will be bedridden and unable to walk soon. When this happens, I will lose several of my caregivers for various reasons. I have tried to "solve" this problem, but keep coming back to the fact that I may need to stop working to take care of him myself, which will be very hard financially on us, but is probably the best choice.
Anyway, I would love to hear your situations and/or stories about what happened to you and why you made the decisions you did. Did you stop working because you decided to, or did you have no other choice?
I would also like to mention that flex time or special accommodations by my workplace is not possible.
This forum is great and I look forward to hearing about your experiences and advice.
Thanks