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patrick123

Distinguished member
Joined
Oct 4, 2012
Messages
442
Reason
PALS
Diagnosis
09/2012
Country
US
State
co
City
thornton
I at the point where FVC is about 20%, and I'm have a lot of trouble breathing. I have had my trilogy adjust 4 or 5 times. I have also had 4 overnight o2 saturation test done. In all the tests my 02 saturation has been between in the low to mid 80,s and that's with oxygen.
I also have periods of my breathing stopping at night. That's very scary.
At what point did anyone start Traching. Was it an emergency or did you request it.

Thank Patrick
 
I'm not quite there yet, but my pulmonoligst mentioned that the recovery is easier if the operation is done while you still have some ability to breathe on your own.

So my wholly unqualified opinion is that you're probably to the point where you should go for it.
 
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