- Feb 12, 2008
- thousand oaks
Hi all, my husband was diagnosed w/ALS 2/20/08, thanks (weird thing to say about ALS,huh?) in part to the encouragement you guys gave me to rush for another neuro. He has been on the rilutek since 2/21/08. On 2/19 he had a full day of work, tired, but normal day, since being on the rilutek he is very exhausted, naps daily, (w/much encouragement from me). My question is that the rilutek side effects say they include weakness/fatigue. Does this wear off? We have just bumped up to 1.5 pills a day, and the weakness is getting worse. What has been the experience of those taking rilutek? Unfortunately my husband is progressing very rapidly, his first symptoms, in hindsight, probably started around November, with really noticeable symptoms in January. His left arm is now very weak, and his legs are beginning to be involved. Any feedback you with experience taking this med have is greatly appreciated.