Awidz
New member
- Joined
- Jan 20, 2018
- Messages
- 9
- Reason
- Other
- Country
- Uni
- State
- Arkansas
- City
- Fayetteville
sorry guys , have been having unsolved neuro issue for 10 months, now getting sent to mayo clinic in rochester in 2 weeks.
So i have had musular twiching in toes (really arch of left foot) that causes my toes to move, then it moved to my left leg, then moved to left eye, mostly over last 8 months, but took over neck by adams apple and my abdomin a month ago.
I have had a mri of brain and upper thorasic and and emg that all came out clean. But in past month i have noticed i slur my words some, not always and i have had some issue with food getting stuck when eating, drinking seems to be fine, but the tip of my tonque feels like it has been burned, weird sensation last couple weeks.
My question is my docs here all told me no als, no parkinsons, no ms. But i read all these test would not rule it out, am i just in a crappy area for docs that have no idea what they are talking about? i am just about to turn 46, worried about als, have 2 young kids and am sole supporter of my household. Terrified to go to mayo for testing, was there 16 years ago and they almost killed me literally with a procedure and swore i would never go back, but now have no choice.
Oh also 6 months into this started having nighttime erections 3-5 times per night that do not go away till i stand up or go pee, but called neuroligist on this and he said he sees nothing on spine scan that would be causing it, again are they all just blowing off? would i have seen more signs after 10 months of this if it was als they were missing, i have no atrophy in muscles, but some swallowing issue , maybe just in my head, but would an emg of my left side arm, legs and feet shown if it was bulbar als?
just dont get this swallowing thing last couple weeks, sorry has me scared. anyone that has any real answers i would appreciate it....thanks much
So i have had musular twiching in toes (really arch of left foot) that causes my toes to move, then it moved to my left leg, then moved to left eye, mostly over last 8 months, but took over neck by adams apple and my abdomin a month ago.
I have had a mri of brain and upper thorasic and and emg that all came out clean. But in past month i have noticed i slur my words some, not always and i have had some issue with food getting stuck when eating, drinking seems to be fine, but the tip of my tonque feels like it has been burned, weird sensation last couple weeks.
My question is my docs here all told me no als, no parkinsons, no ms. But i read all these test would not rule it out, am i just in a crappy area for docs that have no idea what they are talking about? i am just about to turn 46, worried about als, have 2 young kids and am sole supporter of my household. Terrified to go to mayo for testing, was there 16 years ago and they almost killed me literally with a procedure and swore i would never go back, but now have no choice.
Oh also 6 months into this started having nighttime erections 3-5 times per night that do not go away till i stand up or go pee, but called neuroligist on this and he said he sees nothing on spine scan that would be causing it, again are they all just blowing off? would i have seen more signs after 10 months of this if it was als they were missing, i have no atrophy in muscles, but some swallowing issue , maybe just in my head, but would an emg of my left side arm, legs and feet shown if it was bulbar als?
just dont get this swallowing thing last couple weeks, sorry has me scared. anyone that has any real answers i would appreciate it....thanks much
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