RogerC53
Member
- Joined
- Feb 19, 2019
- Messages
- 14
- Reason
- DX MND
- Diagnosis
- 08/2019
- Country
- US
- State
- CA
- City
- Gilroy
Was diagnosed with MND/ALS last August and have been struggling with acceptance of the disease. I was diagnosed at Stanford by an ALS specialist (excellent doctor) who reviewed my diagnosis with his colleagues and they agreed.
My problem is that some of my symptoms just don’t seem to match up with what I have read about MND/ALS on forums and research sites. I do have weak limbs, cramping, spasms, and twitching, breathing problems, lack of dexterity. My voice is getting weaker and gravely and slight swallowing problems. So I do have a lot of the symptoms.
Below are the symptoms that seem not to align with MND/ALS.
First, my muscles get really sore when I use them. My arms and legs feel like they are cast iron and getting heavy. On a couple of rare occasions my hand dexterity will slightly improve for part of a day.
I just want to know if others have had similar symptoms that don’t align with typical MND/ALS symptoms.
I don’t want this disease and I may just be looking for any signs that point in a different direction.
Your thoughts and responses are appreciated.
Roger
My problem is that some of my symptoms just don’t seem to match up with what I have read about MND/ALS on forums and research sites. I do have weak limbs, cramping, spasms, and twitching, breathing problems, lack of dexterity. My voice is getting weaker and gravely and slight swallowing problems. So I do have a lot of the symptoms.
Below are the symptoms that seem not to align with MND/ALS.
First, my muscles get really sore when I use them. My arms and legs feel like they are cast iron and getting heavy. On a couple of rare occasions my hand dexterity will slightly improve for part of a day.
I just want to know if others have had similar symptoms that don’t align with typical MND/ALS symptoms.
I don’t want this disease and I may just be looking for any signs that point in a different direction.
Your thoughts and responses are appreciated.
Roger