Thompson66
New member
- Joined
- Apr 15, 2021
- Messages
- 2
- Reason
- Lost a loved one
- Diagnosis
- 01/2006
- Country
- US
- State
- MO
Good Morning All,
I have a couple questions regarding FALS that I wasn't able to easily find answers for online.
Background: My dad was born in 1966. He died in 2010 when I was 12.
I had been reading about it lately and found that there is like 10% of "sporadic" ALS that is still genetic. I was also reading about FTD and ALS link.
1. My grandmother on my dad's side had what we always just called "dementia" when she was in her early/mid 80s. After asking about the symptoms, it sounds a lot like Alzheimer's to me. She started off by forgetting things then got delusional and what not until the end. Is there any chance that it was actually FTD and we didn't know it?
2. Should I be worried about the genetic risk if my dad had ALS? I'm confused about such a high percentage of "sporadic" cases having a genetic link. In this case, would I want to get tested for C9 gene? Or would it be unlikely that my grandmother had FTD in the first place?
For reference, my Dad was the youngest of 4 brothers and none of them have anything wrong with them.
Thanks,
Tom
I have a couple questions regarding FALS that I wasn't able to easily find answers for online.
Background: My dad was born in 1966. He died in 2010 when I was 12.
I had been reading about it lately and found that there is like 10% of "sporadic" ALS that is still genetic. I was also reading about FTD and ALS link.
1. My grandmother on my dad's side had what we always just called "dementia" when she was in her early/mid 80s. After asking about the symptoms, it sounds a lot like Alzheimer's to me. She started off by forgetting things then got delusional and what not until the end. Is there any chance that it was actually FTD and we didn't know it?
2. Should I be worried about the genetic risk if my dad had ALS? I'm confused about such a high percentage of "sporadic" cases having a genetic link. In this case, would I want to get tested for C9 gene? Or would it be unlikely that my grandmother had FTD in the first place?
For reference, my Dad was the youngest of 4 brothers and none of them have anything wrong with them.
Thanks,
Tom