nvmets10
New member
- Joined
- Jun 12, 2020
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- New York
I've spent a lot of time reading these forums of late and just want to say how amazed I am by the kindness and openness of members here, especially given the unbelievable hardships endured. It's remarkable.
I'm hoping to learn and understand more about bulbar onset ALS. After experiencing the usual full body twitches most seem to seek advice about, as well as arm/leg weakness, I saw a neurologist for an EMG on my limbs. She didn't see reason for concern. But in the week since, there's also been a change in my voice - noticeably raspier for no logical reason (no cough, sore throat, congestion) - along with new twitching on the right side of the jaw (the same side I've felt periodic discomfort in my neck). And while there's been no major difficulty swallowing yet, it hasn't come as easy during this period as in the past (or at least I'm noticing it more).
So I'm curious what the initial presentation generally seems to be with the bulbar form. Would it start with slurring or might it just be a vocal issue, and would tongue atrophy precede them? What's the best test to diagnose - would a neurologist still be the best person to address throat issues?
Thanks in advance for the advice and guidance.
I'm hoping to learn and understand more about bulbar onset ALS. After experiencing the usual full body twitches most seem to seek advice about, as well as arm/leg weakness, I saw a neurologist for an EMG on my limbs. She didn't see reason for concern. But in the week since, there's also been a change in my voice - noticeably raspier for no logical reason (no cough, sore throat, congestion) - along with new twitching on the right side of the jaw (the same side I've felt periodic discomfort in my neck). And while there's been no major difficulty swallowing yet, it hasn't come as easy during this period as in the past (or at least I'm noticing it more).
So I'm curious what the initial presentation generally seems to be with the bulbar form. Would it start with slurring or might it just be a vocal issue, and would tongue atrophy precede them? What's the best test to diagnose - would a neurologist still be the best person to address throat issues?
Thanks in advance for the advice and guidance.