- Feb 12, 2008
- thousand oaks
Hi everyone - I have been reading thru everyones posts over the past few days, thanks for the time everyone has put in here... I have several questions - my husband is 51 years old, and over the past few months he has developed slurred speech, drooling, diffculty swallowing, esp thin liquids and pills, he makes odd noises at night, almost like he is chewing something, and he laughs/crys at seemingly inappropriate times. He sounds different when he laughs and crys now also. So, we are in the tedious process of a work up. He has had an MRI, multiple labs, x rays, and a lumbar puncture. Everything has been totally normal with the exception of his protein in his lumbar puncture was on the high end of normal. His neuro suggested he take B-50, and come back in a month. I asked if he was planning nerve conduction, and he said that it was too early, and that he would make a referral when the time was right. So, ... here are my questions. 1. What would you do if your neuro said that, wait it out?... or run to the nearest univerisit neuro program? 2. Has anyone had a diagnosis of ALS with symptoms similar to this? I have the handicap of being a registered nurse, which means I know enough to make myself a nut bucket, but not much else. My husband is very frustrated, his speech is continuing to get worse, especially when he is tired, I now often have to translate for him. Can a progressive bulbar palsy take hold that fast? I want to do the right thing here.. our neuro said, and I quote "either this is the tip of the iceberg, and he has the beginninngs of progressive bulbar palsy/als, or it will just go away"... I don't knwo what to make of any of it... any ideas?