In fairness to Grumpy, LSU is actually an MDA center. But as we've noted before, ALSA/MDA is no guarantee of anything. I wish it were, Grumpy. One thing you could try would be to call the clinic director (if that's not your doc!) and ask for more/different help. But I would call Tulane, too.
My husband was about your size and your wife is not too far from mine. That's what power lifts are for. She may need help at some point. It's good to take stock of your friends, families, work buddies -- anyone in your corner. They all have friends/family, too, and if you're in a small town, hopefully you'll have support when the time comes.
I almost want to advise you to turn off the O2 to see if that helps, but not knowing anything about what you have and what your settings are, I can't. Maybe you could try that for a few minutes while your wife monitors you, and it would be even better if she could see what your oxygen is with a finger tip oximeter that you buy in a drug store.
But I agree, you need to see a pulmonologist before or while you see the doc(s) that hopefully can clarify what's wrong. The pulmo at LSU is supposedly good per some sources -- have you seen him?
