shellshell
Active member
- Joined
- Apr 11, 2007
- Messages
- 61
- Reason
- Loved one DX
- Country
- US
- State
- Arkansas
- City
- Scott
As some of you know, my dad was diagnosed with ALS in February 2007. I have a question regarding the pain associated with ALS. I don't know if it is the ALS or the fact that he has arthritis of the spine also but he "STAYS" in pain most of the time. He has a huge bulge in his back on his right side that gives him so much pain and I don't know if it is coming from the ALS or the arthritis or a combination of both.
He is taking so much medication now for the pain and the ALS doctor put him on a pain patch, which he is refusing to take right now because it contains morphine...I feel so helpless, I have prayed and prayed about this and just get so upset about it because he doesn't deserve to be in this much pain...
It is just amazing to me that in January of this year he was actually working and now he is pretty much in an electric wheelchair when out side home and using a walker when inside. It breaks my heart.
Thank goodness I only live about two mile from my parents because I go over everyday after I get off work and visit with him and it always leads to me massaging his back each night before he goes to bed, it's kinda a ritual now...LOL He loves it and is getting so spoiled to it but that is okay, I will do it everyday if that is what he wants, if that will bring him some relief even for a minute and a smile to his face.
This disease has taught me so much, so much I needed to be taught and so much I wish I had never known. It's such an unfair disease, but then again, I guess what disease isn't, I guess I am just needing to vent. Along with my husband, my parents are my life and we are so incredibly close. My husband and I are trying to adopt and I struggle with should we be doing this right now. We've always wanted children and have been married for 13 years and things are finally falling into place where the adoption is concerned but I guess I selfishly worry that it will take time away from my time with my daddy...there again, I know nothing would bring a bigger smile to his face than to see me and my husband with our own child/children...I just want to do what is right and I am struggling with that right now....
Thanks so much for letting me get this off my chest right now. It's been a tough past few months for my family as I am sure it has been for each of you...
Hope you all have a wonderful day! :lol:
Michelle
He is taking so much medication now for the pain and the ALS doctor put him on a pain patch, which he is refusing to take right now because it contains morphine...I feel so helpless, I have prayed and prayed about this and just get so upset about it because he doesn't deserve to be in this much pain...
It is just amazing to me that in January of this year he was actually working and now he is pretty much in an electric wheelchair when out side home and using a walker when inside. It breaks my heart.
Thank goodness I only live about two mile from my parents because I go over everyday after I get off work and visit with him and it always leads to me massaging his back each night before he goes to bed, it's kinda a ritual now...LOL He loves it and is getting so spoiled to it but that is okay, I will do it everyday if that is what he wants, if that will bring him some relief even for a minute and a smile to his face.
This disease has taught me so much, so much I needed to be taught and so much I wish I had never known. It's such an unfair disease, but then again, I guess what disease isn't, I guess I am just needing to vent. Along with my husband, my parents are my life and we are so incredibly close. My husband and I are trying to adopt and I struggle with should we be doing this right now. We've always wanted children and have been married for 13 years and things are finally falling into place where the adoption is concerned but I guess I selfishly worry that it will take time away from my time with my daddy...there again, I know nothing would bring a bigger smile to his face than to see me and my husband with our own child/children...I just want to do what is right and I am struggling with that right now....
Thanks so much for letting me get this off my chest right now. It's been a tough past few months for my family as I am sure it has been for each of you...
Hope you all have a wonderful day! :lol:
Michelle